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Table 1 Characteristics of study participants and health-related quality of life by country

From: Economic burden and health-related quality of life in tenosynovial giant-cell tumour patients in Europe: an observational disease registry

  AUT (n = 9) GER (n = 12) SP (n = 13) FRA (n = 4) ITA (n = 38) NLD (n = 61) ALL (n = 137)
Age, mean (sd) 39.44 (19.25) 45 (13.44) 43.46 (13.93) 55 (22.2) 47.79 (13.92) 42.67 (13.63) 44.52 (14.44)
Gender, % female 67% 50% 62% 100% 61% 62% 62%
Highest level of education*, %        
Primary school 78% 8% 38% 0% 8% 8% 15%
Secondary school 11% 50% 23% 50% 26% 61% 43%
University 11% 42% 38% 50% 42% 31% 35%
Employment status**, % employed 44% 67% 62% 0% 63% 56% 57%
TGCT Severity        
Not assessable 44% 8% 38% 25% 3% 10% 13%
Moderate diffuse 44% 50% 23% 50% 47% 20% 33%
Severe diffuse 11% 42% 38% 25% 50% 70% 54%
Health-related quality of life        
EQ-5D index score at baseline, mean (sd) 0.79 (0.25) 0.61 (0.27) 0.77 (0.21) 0.85 (0.15) 0.75 (0.24) 0.76 (0.15) 0.75 (0.21)
EQ VAS Score at baseline, mean (sd) 69.44 (15.7) 61.25 (25.24) 64.85 (24.28) 78 (16.31) 68.13 (23.63) 69.83 (19.96) 68.34 (21.48)
EQ-5D index score at follow-up, mean (sd) 0.75 (0.36) 0.62 (0.34) 0.86 (0.09) 0.8 (0.22) 0.76 (0.26) 0.77 (0.18) 0.76 (0.24)
EQ VAS Score at follow-up, mean (sd) 74.38 (16.78) 58.64 (26.93) 81.58 (17.81) 76.25 (14.36) 72 (17.74) 70.25 (18.03) 71.27 (19.11)
  1. AUT = Austria; GER = Germany; SP = Spain; FRA = France; ITA = Italy; NLD = The Netherlands
  2. *Nine missing values
  3. **Two missing values