Table 2 Meaningful concepts from interviewed people with skeletal dysplasias (n = 14) linked to the ICF categories
Count | Meaningful concepts on functioning or accessibility | ICF code | ICF title | Decision |
|---|---|---|---|---|
1 | Mental functioning | b130* | Energy and drive functions (G) | Keep |
2 | Sleeping | b134* | Sleep functions | Keep |
3 | Pain | b280* | Pain (G) | Keep |
4 | Allergies, infections | b435* | Immunological system functions | Keep |
5 | Stiff joints | b710* | Mobility of joint functions | Keep |
6 | Loose joints | b715* | Stability of joint functions | Keep |
7 | Muscle strength | b730* | Muscle power functions | Keep |
8 | Significance of a skill | d155* | Acquiring skills | Keep |
9 | Basic movements (turning oneself, getting up sitting from lying, getting lying down on stomach, moving on ones buttock) | d410* | Changing basic body position | Keep |
10 | Using hands | d445* | Hand and arm use | Keep |
11 | Walking | d450* | Walking (G) | Keep |
12 | Running, climbing stairs | d455 | Moving around | Add |
13 | Moving with public vehicles | d470 | Using transportation | Add |
14 | Personal hygiene, taking care of beauty | d520* | Caring for body parts | Keep |
15 | Toileting, peeing and cannot wipe oneself | d530* | Toileting | Keep |
16 | Dressing | d540* | Dressing | Keep |
17 | Eating | d550* | Eating | Keep |
18 | Difficulty of accessing services | d620 | Acquisition of goods and services | Add |
19 | Preparing meals | d630 | Preparing meals | Add |
20 | Doing housework e.g. washing clothes | d640 | Doing housework | Add |
21 | Friends | d750 | Informal social relationships | Add |
22 | Work as a resource, doing work, having a career | d850 | Remunerative employment | Add |
23 | Hobbies (sports, games, circus, playing music, movies etc.) | d920 | Recreation and leisure | Add |
24 | Experiencing oneself as a person with disability | d940 | Human rights | Add |
25 | Small assistive technologies, special shoes | e115* | Products and technology for personal use in daily living | Keep |
26 | Assistive technologies for moving (car, electric wheelchair or scooter) | e120* | Products and technology for personal indoor and outdoor mobility and transportation | Keep, but consider car |
27 | Public vehicles | e1200 | General products and technology for personal indoor and outdoor mobility and transportation | Consider in e575 |
28 | Changes to a car | e1201 | Assistive products and technology for personal indoor and outdoor mobility and transportation | Consider in e120 |
29 | Accessibility at public areas (study places, bank automates, banks, shops, high desks, stairs, heavy doors) | e150* | Design, construction and building products and technology of buildings for public use | Keep |
30 | Accessibility at home, changes to one’s apartment (socles, additional taps, heightened floor at balcony, handles and grips, lowered washbasin, power sockets, personal bath chair and furniture) | e155 | Design, construction and building products and technology of buildings for private use | Add |
31 | Accessibility at home entrance (lowered door handles, electric lock, door pumps) | e1550 | Design, construction and building products and technology for entering and exiting of buildings for private use | Consider in e155 |
32 | Seasonal changes | e245 | Time-related changes | Add |
33 | Support from family | e310* | Immediate family | Keep |
34 | Support from friends and peers | e320* | Friends | Keep |
35 | Support from personal assistant | e340* | Personal care providers and personal assistants | Keep |
36 | Other people offer help without asking | e345 | Strangers | Add |
37 | Attitudes in public services | e445 | Individual attitudes of strangers | Add |
38 | Attitudes of health workers | e450* | Individual attitudes of health professionals | Keep |
39 | Inequal access to services | e455 | Individual attitudes of other professionals | Add |
40 | Other people's attitudes, discrimination | e460 | Societal attitudes | Add |
41 | Public transportation services | e540 | Transportation services, systems and policies | Consider in e575 |
42 | Support from society (disability services and benefits) | e575 | General social support services, systems and policies | Keep |
43 | Access to assistive products and transportation services | e580* | Health services, systems and policies | Keep |
44 | Other challenges (lymphatic drainage in the brain) | s110 | Structure of brain | Not include |
45 | Joint detrition, bone fractures, accidents | s7 | Structures related to movements | Add |
46 | Bone displacements (correction surgery) | s770 | Additional musculoskeletal structures related to movement | Consider in s7 |