Patient | Time since HCT (August 2020) | Growth Z scores for age | Nutritional intake | Time (months) to resolution of gastrointestinal symptoms | |||||||
---|---|---|---|---|---|---|---|---|---|---|---|
Weight | Height | MUAC | Protein type | Fat (long chain) g/kg/day | Fat (long chain) Total g/day | Feeding route | |||||
2 | 4 years 6 months | Pre HCT | 0.1 | N/A | − 0.81 | Pre HCT | Amino acids | 0.2 | 2.6 | Gastrostomy | 15 |
 |  | Post HCT | 0.55 | 0.59 | 0.79 | Post HCT | Intact | ≥ 1.3 | ≥ 30 | Oral and reducing overnight feed (40%) |  |
3 | 2 years 9 months | Pre HCT | 0.97 | 0.33 | 0.01 | Pre HCT | Amino acids | < 0.1 | 0.8 | Gastrostomy | 7 |
 |  | Post HCT | 0.54 | 0.07 | 1.00 | Post HCT | Intact | ≥ 1.4 | ≥ 30 | Oral and reducing overnight feed (15%) |  |
4 | 2 years 1 month | Pre HCT | − 0.94 | − 0.86 | − 0.23 | Pre HCT | Amino acids | < 0.1 | 0.8 | Oral | 1 |
 |  | Post HCT | 1.95 | 0.70 | N/A | Post HCT | Intact | 1.7 | 30 | Oral |  |
5 | 10 months | Pre HCT | − 0.64 | − 1.00 | 0.00 | Pre HCT | Amino acids | < 0.1 | 0.8 | Gastrostomy | 10 |
 |  | Post HCT | − 0.59 | − 1.40 | 0.07 | Post HCT | Amino acids | ≤ 0.3 | ≤ 5 | Oral/gastrostomy |  |