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Fig. 2 | Orphanet Journal of Rare Diseases

Fig. 2

From: Investigating health-related quality of life in rare diseases: a case study in utility value determination for patients with CLN2 disease (neuronal ceroid lipofuscinosis type 2)

Fig. 2

Mean score across disease stages in individual dimensions of the EQ-5D-5L. 1 = no problems, 2 = slight problems, 3 = moderate problems, 4 = severe problems, 5 = extreme problems. Mean values ± 1 standard error are shown on the chart. UK value set. VL, vision loss; PC, palliative care

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