From: The impact of severe rare chronic neurological disease in childhood on the quality of life of families—a study on MLD and PCH2
Source of support
Percenta
Family
73.8
Friends
66.7
Other affected families
28.6
Family rehabilitation/ health treatments /hospice
21.4
Otherb
Religion
11.9
Patient support groups
9.5
Neighbors
2.4
Not answered
2.3