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Table 5 Sources of support for parents of affected children in the participating families (n = 43)

From: The impact of severe rare chronic neurological disease in childhood on the quality of life of families—a study on MLD and PCH2

Source of support

Percenta

Family

73.8

Friends

66.7

Other affected families

28.6

Family rehabilitation/ health treatments /hospice

21.4

Otherb

21.4

Religion

11.9

Patient support groups

9.5

Neighbors

2.4

Not answered

2.3

  1. aMultiple responses were possible
  2. be.g. hobby, activities, work, therapist