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Table 5 Sources of support for parents of affected children in the participating families (n = 43)

From: The impact of severe rare chronic neurological disease in childhood on the quality of life of families—a study on MLD and PCH2

Source of support Percenta
Family 73.8
Friends 66.7
Other affected families 28.6
Family rehabilitation/ health treatments /hospice 21.4
Otherb 21.4
Religion 11.9
Patient support groups 9.5
Neighbors 2.4
Not answered 2.3
  1. aMultiple responses were possible
  2. be.g. hobby, activities, work, therapist