Adaptations and support for communication is essential and a speech and language expert should be involved in all patients with CLN2
|
41
|
NA
|
92
|
Considerations should always be made in order to maintain a patient’s activity and social interaction by aiding their mobility, communication abilities, and special considerations around loss of vision
|
41
|
NA
|
95
|
Considerations to teach patient alternative communication strategies and strategies for utilising audio sense following vision dysfunction may assist a patient in their ability to socialise
|
40
|
NA
|
92
|
Early use of medical aids such as orthoses, therapy chairs, standing and walking equipment supports mobility which improves quality of life
|
41
|
NA
|
92
|
Caregiver burden has a significant impact on families affected by CLN2, and appropriate tools should be used to capture this
|
41
|
D
|
92
|
Visual support is critical to maintaining function, and all measures should be employed to maintain visual ability
|
41
|
NA
|
86
|
Physical, occupational, speech, and other supporting therapy interventions are recommended for patients in order to maintain activity and the highest of quality of life
|
41
|
D
|
94
|