Involvement of mental health professionals in the treatment of tuberous sclerosis complex–associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey

Table 2 Demographics of survey participants

Characteristics, n (%)	HCPs contacted via email (specialty verified, N = 659)	Respondents (N = 359)
TSC caregivers/families	N/A^a	263
HCPs	659	96 (15% HCP response rate)
TSC specialists	9	27^b
Neurologists (including neuropsychiatrists)^c	194	59
Psychiatrists	154	6
HCPs with limited experience with TSC^d	104	4
Other specialties^e	34	0
Specialty not specified	164	0

HCP healthcare provider, TSC tuberous sclerosis complex
^aTSC caregivers/families were invited to participate in the survey via social media channels and the total number of people reached via social media platforms cannot be ascertained
^bThe most likely reason for the larger recorded number of TSC specialists who responded to the survey than those contacted via email was that it was difficult to confirm an HCP’s participation in a multidisciplinary TSC clinic based on contact details alone. However, HCPs were directed to specific questionnaires based on responses to initial questions regarding their clinical practice, so that it was possible to identify which participants were considered TSC specialists
^cIn some European countries, neuropsychiatrists are physicians with a double qualification in neurology and in psychiatry. For the purposes of our study, we included neuropsychiatrists in the group of neurologists
^dHCPs with limited experience with TSC refers mainly to primary care physicians
^eOther specialties included nephrology (13), pulmonology (4), laser medicine (3), genetics (4), oncology and hematology (3), cardiology (1), radiology (1), urology (4), and endocrinology (1)

ISSN: 1750-1172