Skip to main content
Fig. 8 | Orphanet Journal of Rare Diseases

Fig. 8

From: Involvement of mental health professionals in the treatment of tuberous sclerosis complex–associated neuropsychiatric disorders (TAND): results of a multinational European electronic survey

Fig. 8

Barriers to effective TAND assessment according to HCPs. HCP healthcare provider, TAND tuberous sclerosis complex–associated neuropsychiatric disorders, TSC tuberous sclerosis complex. aAnswers supplied by respondents under the “Others” field were: (1) No barrier in our institution/country (2 responses); (2) Health economic barriers, lack of refinancing, etc.; (3) A lack of interest and experience on the part of the practitioner despite current data and knowledge of the need for routine examinations and standardized tests; (4) Lack of funding for outpatient examinations; (5) Lack of time and changing caregivers with different expressiveness; (6) I ask about sleep disorders or relational disorders, but forget to distribute/address TAND regularly; (7) Difficulty obtaining support in psychiatry; (8) Lack of time in consultations, not all centers have access to a pediatric neuropsychologist; (9) Generally time and capacity. bHCPs with limited experience with TSC refer mainly to primary care physicians

Back to article page