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Table 4 Breakdown of response pairs, in the CEF and SRQ, to four discordant items

From: Convergence of patient- and physician-reported outcomes in the French National Registry of Facioscapulohumeral Dystrophy

Item

SRQ answer

CEF answer

Difficulty in closing eyes

 

Uncertain

No

Yes

Total

 

Uncertain

0 (0.0%)

0 (0.0%)

1 (0.4%)

1 (0.4%)

 

No

8 (2.9%)

65 (24%)

135 (50%)

208 (76%)

 

Yes

0 (0.0%)

3 (1.1%)

60 (22%)

63 (23%)

 

Total

8 (2.9%)

68 (25%)

196 (72%)

272 (100%)

Ability to whistle

 

Uncertain

No

Yes

Total

 

Uncertain

0 (0.0%)

2 (0.7%)

0 (0.0%)

2 (0.7%)

 

No

1 (0.4%)

114 (42%)

7 (2.6%)

122 (45%)

 

Yes

2 (0.7%)

109 (40%)

36 (13%)

147 (54%)

 

Total

3 (1.1%)

225 (83%)

43 (16%)

271 (100%)

Winged scapula

  

No

Yes

Total

 

No

 

6 (2.5%)

30 (12%)

36 (15%)

 

Yes

 

3 (1.2%)

202 (84%)

205 (85%)

 

Total

 

9 (3.7%)

232 (96%)

241 (100%)

Vertigo

  

No

Yes

Total

 

No

 

216 (77%)

0 (0.0%)

216 (77%)

 

Yes

 

65 (23%)

0 (0.0%)

65 (23%)

 

Total

 

281 (100%)

0 (0.0%)

281 (100%)

  1. SRQ self-report questionnaire, CEF clinical evaluation form