Table 3 Clinical diagnosis data recorded by form type
Characteristic | Self-report questionnaire | Clinical evaluation form |
|---|---|---|
Age at onset (n = 236) | ||
Mean ± SD Range (years) | 28.6 ± 17.4 0–75 | 26.9 ± 16.6 1–73 |
First symptom (n = 255) | ||
Asymptomatic patient | 2 (0.8%) | 2 (0.8%) |
Facial involvement | 41 (16%) | 38 (15%) |
Proximal upper limb involvement | 130 (51%) | 139 (55%) |
Distal upper limb involvement | 2 (0.8%) | 7 (2.7%) |
Proximal lower limb involvement | 41 (16%) | 27 (11%) |
Distal lower limb involvement | 10 (3.9%) | 25 (9.8%) |
Other symptom | 28 (11%) | 17 (6.7%) |