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Table 3 Impact of COVID-19 on rare disease patients in different regions across the world

From: A thematic study: impact of COVID-19 pandemic on rare disease organisations and patients across ten jurisdictions in the Asia Pacific region

  Europe [12] USA [13] Canada [14] Ireland [15] This study: Asia Pacific region
1. Faced challenges accessing medical care or treatment 48% 32% Nearly 50% 31% 66%
2. Difficulty accessing medical care: scheduled appointments postponed or cancelled 66% 79% Nearly 50% 53% 68%*
3. Feeling concerned about their rare health condition because of COVID-19 / / 75% 73% 20%*
4. Difficulty accessing medicines 21% 14% Nearly 40% / 58%
5. Trouble procuring personal protective equipment / 9.5% / / 55%
6. General impacts
[% of patients impacted in some degree; % of patients that were very or extremely impacted]
/ 92% / / 95%; 57%
7. Negative impact on physical health or wellbeing 59% / / 59% 36%*
8. Negative impact on mental health or well-being 67% 94% Nearly 50% 62% 29%*
9. Negative impact on social health or well-being / / / / 57%*
10. Negative financial impact (i.e. loss of income or job) / 37% / 33% 14%*
  1. *Based on top 3 areas provided as qualitative responses
  2. All of the studies were conducted during April–June 2020
  3. COVID-19 Coronavirus Disease of 2019, USA United States of America