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Table 4 Ranking of 5 most important domains in the web survey

From: Validation of the 5-domain Niemann-Pick type C Clinical Severity Scale

  # Times ranked
n (% of row total)
# Times in Top 5
n (% of total participants [n = 49])
First Second Third Fourth Fifth
Ambulation 10
(24.4)
12
(29.3)
9
(22.0)
4
(9.8)
6
(14.6)
41
(83.7)
Swallow 8
(22.9)
6
(17.1)
8
(22.9)
8
(22.9)
5
(14.3)
35
(71.4)
Speech 1
(3.1)
4
(12.5)
9
(28.1)
8
(25.0)
10
(31.3)
32
(65.3)
Memory 3
(10.7)
4
(14.3)
5
(17.9)
9
(32.1)
7
(25.0)
28
(57.1)
Cognition 8
(34.8)
4
(17.4)
4
(17.4)
4
(17.4)
3
(13.0)
23
(46.3)
Fine motor skills 2
(9.1)
8
(36.4)
2
(9.1)
5
(22.7)
5
(22.7)
22
(44.9)
Eye movement 2
(10.5)
3
(15.8)
5
(26.3)
2
(10.5)
7
(36.8)
19
(38.8)
Seizures 8
(57.1)
1
(7.1)
0 3
(21.4)
2
(14.3)
14
(28.6)
Hearing 2
(18.2)
3
(27.3)
3
(27.3)
1
(9.1)
2
(18.2)
11
(22.4)