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Table 1 Patient characteristics and pain profiles

From: Suppressed prefrontal cortex oscillations associate with clinical pain in fibrodysplasia ossificans progressiva

Patient

Age

(year)

Gender

Pain intensity*

(0–10)

Pain location*

Analgesic use**

HO location

Comments

1

16

Female

0

–

–

Jaw

Pain (5–6/10) in jaw experienced in past 7 days

Oxycodone used 2 weeks prior, Ice alleviates pain

2

12

Male

0

–

Naproxen

Arm, neck, shoulders & back

Pain rarely

Experienced. Persistent use of naproxen

3

29

Female

4

Left foot

–

Left foot and left shoulder

Pain (1–2/10) in left shoulder experienced in past 7 days

Intermittent use of ketoprofen

Wheelchair use

4

28

Female

0

–

–

Right shoulder and left hip

Pain experienced ~ 2 years ago for ~ 6 months

Pain may be evoked by walking

5

22

Male

3

Back, knee, & Ankle

Oxycodone & Fentanyl

Jaw, wrist, fingers, elbows, back, hips, left knee, thigh, left calf, & ankles

Pain (7/10) in past 7 days

Throbbing pain reported

Persistent use of oxycodone & fentanyl

Wheelchair use

6

9

Male

3

Neck & back

Ibuprofen

Neck, back, shoulder, knees

Dull pain reported

Intermittent use of ibuprofen

7

32

Male

1

Lower back & ankle

–

Neck, back, left thigh, & toes

Pain (4–5/10) in past 7 days

Pain can be a deep ache (back) or sharp & sudden (ankle)

8

12

Female

2

Right shoulder

Acetaminophen

Neck, back, & clavicle

Pain (2/10) also experienced 2 days prior in shoulder

Intermittent use of acetaminophen

9

7

Male

0

–

–

Neck & back

Pain rarely experienced in neck or back

10

30

Female

6

Lower back, back of leg, & both feet

Acetaminophen and oxycodone

Back, arms, legs, right hip, & ankles

Acetaminophen & Oxycodone taken 2 weeks prior

Intermittent use of acetaminophen and oxycodone

Wheelchair use

11

46

Male

3

Jaw, neck, shoulder, & hips

Oxycodone & morphine

Jaw, shoulder, & hips

Pain (5–6/10) in hips

In past 7 days. Persistent use of oxycodone & morphine

Wheelchair use

12

33

Female

0

–

Acetaminophen

Jaw, neck, shoulder, elbows, fingers, rib cage, spine, ankles, hips, & thighs

Pain (2–3/10) experienced

In last 7 days in neck and

Shoulder

Pain evoked by physical activity

Intermittent use of acetaminophen

Wheelchair use

13

32

Female

7

Jaw & chest

–

Jaw, neck, shoulder, arms, chest, back, hips, knees, & ankles

Pain (6–7) has been Persistently present in chest and jaw

No medications taken to treat pain

Wheelchair use

14

31

Female

3

Right knee

Fentanyl & gabapentin

HO present throughout entire body

Pain (8/10) in right knee in past 7 days

Persistent use of fentanyl & gabapentin

15

58

Female

9

Right shoulder & back

Oxycodone

HO present throughout entire body

Severe level of pain, experienced daily

Intermittent use of oxycodone

Wheelchair use

16

61

Female

8

Neck & back

Acetaminophen & hydrocodone

Chest, rib cage, illiac bone and spine

Persistent pain (8/10) experienced in back

Pain evoked by physical activity

Persistent use of acetaminophen & hydrocodone

Walking cane use

17

23

Female

4

Jaw, neck, back, left lower leg

Gabapentin & celecoxib

Jaw, neck, shoulders, back, & right hip

Pain (2/10) in hamstring, back and jaw. Pain (4/10) in left calf. Both persistent

Persistent use of gabapentin & celecoxib

Predisone also taken

  1. HO, Heterotopic Ossification
  2. *Self-reported ongoing pain intensity and location of pain during the fNIRS study visit. Pain levels correspond to the overall pain experienced during time of fNIRS acquisition
  3. **Analgesic(s) used during the fNIRS study visit