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Table 3 Coping strategies used by children with EB (by age group) and their parents

From: The relationship between quality of life and coping strategies of children with EB and their parents

Age group (in years) CODI subscales
Avoidance Cognitive-palliative Emotional reactions Acceptance Wishful thinking Distance
M (SD) M (SD) M (SD) M (SD) M (SD) M (SD)
Children
8–12 2.25 (1.10) 1.67 (0.48) 1.38 (0.46) 4.21 (0.92) 3.75 (1.34) 3.65 (0.70)
N = 12       
13–18 3.92 (1.15) 1.68 (0.64) 1.81 (0.50) 4.48 (0.47) 4.29 (1.27) 3.47 (1.00)
N = 8       
19–25 3.40 (0.89) 1.86 (0.67) 1.95 (0.72) 4.08 (0.43) 3.63 (1.41) 3.45 (1.15)
N = 10       
Parents N = 49 1.93 (0.71) 2.53 (0.72) 1.78 (0.49) 4.21 (0.54) 3.72 (1.12) 2.69 (1.01)
  1. N = sample; M = mean; SD = standard deviation; Codi = Coping with a Disease Questionnaire