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Table 3 Coping strategies used by children with EB (by age group) and their parents

From: The relationship between quality of life and coping strategies of children with EB and their parents

Age group (in years)

CODI subscales

Avoidance

Cognitive-palliative

Emotional reactions

Acceptance

Wishful thinking

Distance

M (SD)

M (SD)

M (SD)

M (SD)

M (SD)

M (SD)

Children

8–12

2.25 (1.10)

1.67 (0.48)

1.38 (0.46)

4.21 (0.92)

3.75 (1.34)

3.65 (0.70)

N = 12

      

13–18

3.92 (1.15)

1.68 (0.64)

1.81 (0.50)

4.48 (0.47)

4.29 (1.27)

3.47 (1.00)

N = 8

      

19–25

3.40 (0.89)

1.86 (0.67)

1.95 (0.72)

4.08 (0.43)

3.63 (1.41)

3.45 (1.15)

N = 10

      

Parents N = 49

1.93 (0.71)

2.53 (0.72)

1.78 (0.49)

4.21 (0.54)

3.72 (1.12)

2.69 (1.01)

  1. N = sample; M = mean; SD = standard deviation; Codi = Coping with a Disease Questionnaire