Table 2 Health-related quality of life of parents of children with EB compared with healthy adults
From: The relationship between quality of life and coping strategies of children with EB and their parents
| Current sample (N = 48) | Normative sample (N = 4386) | |||||||
|---|---|---|---|---|---|---|---|---|
| Men (N = 9) | Women (N = 39) | Men (N = 1990) | Women (N = 2396) | |||||
| M | SD | M | SD | M | SD | M | SD | |
| Gross motor functioning | 86.1 | 22.0 | 90.5 | 15.2 | 96.9 | 10.3 | 95.5 | 11.3 |
| Fine motor functioning | 95.8 | 12.5 | 96.3 | 8.1 | 99.4 | 4.2 | 98.9 | 4.4 |
| Cognitive functioning | 89.6 | 16.8 | 78.7 | 27.6 | 90.3 | 16.6 | 88.3 | 19.3 |
| Sleep | 74.3 | 19.1 | 70.4 | 27.1 | 84.1 | 19.3 | 77.6 | 22.1 |
| Pain | 73.6 | 31.7 | 73.9 | 23.9 | 85.4 | 16.7 | 80.7 | 18.3 |
| Social functioning | 79.2 | 22.5 | 86.5 | 20.5 | 89.0 | 15.0 | 89.0 | 15.8 |
| Daily activities | 83.3 | 17.4 | 82.1 | 26.8 | 91.1 | 16.4 | 89.5 | 18.4 |
| Sex | 81.9 | 26.6 | 92.3 | 17.8 | 89.2 | 21.9 | 91.0 | 18.9 |
| Vitality | 59.3 | 18.4 | 64.1 | 23.0 | 76.0 | 17.7 | 68.8 | 20.4 |
| Positive emotions | 58.3 | 22.0 | 68.2 | 21.5 | 69.6 | 19.4 | 70.5 | 19.8 |
| Depressive emotions | 79.6 | 28.0 | 79.1 | 23.6 | 85.6 | 15.4 | 80.9 | 17.5 |
| Anger | 82.7 | 17.7 | 91.7 | 11.9 | 89.9 | 14.4 | 89.4 | 14.5 |