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Table 2 Health-related quality of life of parents of children with EB compared with healthy adults

From: The relationship between quality of life and coping strategies of children with EB and their parents

  Current sample (N = 48) Normative sample (N = 4386)
Men (N = 9) Women (N = 39) Men (N = 1990) Women (N = 2396)
M SD M SD M SD M SD
Gross motor functioning 86.1 22.0 90.5 15.2 96.9 10.3 95.5 11.3
Fine motor functioning 95.8 12.5 96.3 8.1 99.4 4.2 98.9 4.4
Cognitive functioning 89.6 16.8 78.7 27.6 90.3 16.6 88.3 19.3
Sleep 74.3 19.1 70.4 27.1 84.1 19.3 77.6 22.1
Pain 73.6 31.7 73.9 23.9 85.4 16.7 80.7 18.3
Social functioning 79.2 22.5 86.5 20.5 89.0 15.0 89.0 15.8
Daily activities 83.3 17.4 82.1 26.8 91.1 16.4 89.5 18.4
Sex 81.9 26.6 92.3 17.8 89.2 21.9 91.0 18.9
Vitality 59.3 18.4 64.1 23.0 76.0 17.7 68.8 20.4
Positive emotions 58.3 22.0 68.2 21.5 69.6 19.4 70.5 19.8
Depressive emotions 79.6 28.0 79.1 23.6 85.6 15.4 80.9 17.5
Anger 82.7 17.7 91.7 11.9 89.9 14.4 89.4 14.5
  1. N = sample; M = mean; SD = standard deviation; Codi = Coping with a Disease Questionnaire