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Table 1 Health-related quality of life of children with EB compared with that of children within the general population

From: The relationship between quality of life and coping strategies of children with EB and their parents

Age group (years) PedsQL subscale Scores on the PedsQL Scale
Current study Chronically Ill individuals Healthy individuals
N M SD N M SD N M SD
2–4 Total score 4 66.85 19.67 18 79.23 22.08 275 89.16 8.51
  Physical health   64.06 24.80   80.21 25.07   92.60 9.26
  Emotional functioning   65.00 17.80   73.33 20.93   78.78 14.23
  Social functioning   67.50 21.02   81.94 21.70   90.62 12.91
  School functioning   70.83 20.97   81.94 28.04   94.84 10.35
5 –7 Total score 10 78.61 20.08 23 76.28 14.83 251 86.94 10.85
  Physical health   73.44 27.37   83.97 17.28   91.71 11.96
  Emotional functioning   71.50 23.81   68.48 18.49   78.78 16.08
  Social functioning   83.00 23.24   75.43 18.82   87.39 16.17
  School functioning   86.50 20.15   72.61 20.27   87.03 14.33
8–12 Total score 12 81.84 11.37 26 80.64 9.32 219 82.11 8.87
(self-completed) Physical health   85.68 11.65   82.21 12.14   84.87 9.30
  Emotional functioning   80.42 14.53   78.85 13.21   77.05 13.66
  Social functioning   84.58 13.05   83.27 12.80   86.14 12.30
  School functioning   76.67 20.71   77.31 13.13   78.70 12.00
13–18 Total score 7 83.64 8.26 25 77.09 9.40 185 82.24 9.15
(self-completed) Physical health   78.13 15.42   81.00 12.00   86.01 9.77
  Emotional functioning   91.43 8.52   71.40 16.62   76.70 15.20
  Social functioning   85.71 6.73   83.40 12.97   89.38 11.56
  School functioning   79.29 21.49   70.20 15.17   74.59 13.16
19–25 Total score 9 79.27 17.83 137 76.65 15.92 512 85.88 11.45
(self-completed) Physical health   77.08 23.39   77.90 21.87   89.60 12.99
  Emotional functioning   77.78 18.89   72.30 18.87   78.54 17.60
  Social functioning   83.89 17.10   81.17 17.11   88.78 13.30
  School functioning   78.33 23.05   74.49 17.96   84.36 14.40
  1. N = sample; M = mean; SD = standard deviation; Pedsql. = Pediactric Quality of Life Scale