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Table 1 Health-related quality of life of children with EB compared with that of children within the general population

From: The relationship between quality of life and coping strategies of children with EB and their parents

Age group (years)

PedsQL subscale

Scores on the PedsQL Scale

Current study

Chronically Ill individuals

Healthy individuals

N

M

SD

N

M

SD

N

M

SD

2–4

Total score

4

66.85

19.67

18

79.23

22.08

275

89.16

8.51

 

Physical health

 

64.06

24.80

 

80.21

25.07

 

92.60

9.26

 

Emotional functioning

 

65.00

17.80

 

73.33

20.93

 

78.78

14.23

 

Social functioning

 

67.50

21.02

 

81.94

21.70

 

90.62

12.91

 

School functioning

 

70.83

20.97

 

81.94

28.04

 

94.84

10.35

5 –7

Total score

10

78.61

20.08

23

76.28

14.83

251

86.94

10.85

 

Physical health

 

73.44

27.37

 

83.97

17.28

 

91.71

11.96

 

Emotional functioning

 

71.50

23.81

 

68.48

18.49

 

78.78

16.08

 

Social functioning

 

83.00

23.24

 

75.43

18.82

 

87.39

16.17

 

School functioning

 

86.50

20.15

 

72.61

20.27

 

87.03

14.33

8–12

Total score

12

81.84

11.37

26

80.64

9.32

219

82.11

8.87

(self-completed)

Physical health

 

85.68

11.65

 

82.21

12.14

 

84.87

9.30

 

Emotional functioning

 

80.42

14.53

 

78.85

13.21

 

77.05

13.66

 

Social functioning

 

84.58

13.05

 

83.27

12.80

 

86.14

12.30

 

School functioning

 

76.67

20.71

 

77.31

13.13

 

78.70

12.00

13–18

Total score

7

83.64

8.26

25

77.09

9.40

185

82.24

9.15

(self-completed)

Physical health

 

78.13

15.42

 

81.00

12.00

 

86.01

9.77

 

Emotional functioning

 

91.43

8.52

 

71.40

16.62

 

76.70

15.20

 

Social functioning

 

85.71

6.73

 

83.40

12.97

 

89.38

11.56

 

School functioning

 

79.29

21.49

 

70.20

15.17

 

74.59

13.16

19–25

Total score

9

79.27

17.83

137

76.65

15.92

512

85.88

11.45

(self-completed)

Physical health

 

77.08

23.39

 

77.90

21.87

 

89.60

12.99

 

Emotional functioning

 

77.78

18.89

 

72.30

18.87

 

78.54

17.60

 

Social functioning

 

83.89

17.10

 

81.17

17.11

 

88.78

13.30

 

School functioning

 

78.33

23.05

 

74.49

17.96

 

84.36

14.40

  1. N = sample; M = mean; SD = standard deviation; Pedsql. = Pediactric Quality of Life Scale