|
What resources do you think should exist for teens and young adults with SMA?
|
|---|
| |
Age
|
Motor function
|
|---|
|
Adolescents n = 44% (95% CI)
|
Young Adults n = 41% (95% CI)
|
p value
|
Non independent sitter n = 31% (95% CI)
|
Sitter/non-independent walker n = 40% (95% CI)
|
Independent walker n = 14% (95% CI)
|
p value
|
|---|
|
A Cure
|
9.09 (2.53–21.67)
|
0
|
0.117
|
0
|
5 (0.61–16.92)
|
14.29 (1.78–42.81)
|
0.116
|
|
Accessible activities
|
6.82 (1.43–18.66)
|
0
|
0.242
|
6.45 (0.79–21.42)
|
0
|
7.14 (0.18–33.9)
|
0.181
|
|
Accessible transit
|
0
|
7.32 (1.54–19.92)
|
0.108
|
6.45 (0.79–21.42)
|
2.5 (0.06–13.16)
|
0
|
0.755
|
|
Big/little support
|
6.82 (1.43–18.66)
|
2.44 (0.06–12.9)
|
0.617
|
3.23 (0.08–16.70)
|
7.5 (1.57–20.39)
|
0
|
0.654
|
|
Caregivers
|
0
|
7.32 (1.54–19.92)
|
0.108
|
6.45 (0.79–21.42)
|
2.5 (0.06–13.16)
|
0
|
0.755
|
|
College/independence materials
|
0
|
100.00%
|
0*
|
12.9 (3.63–29.83)
|
12.5 (4.2–26.8)
|
14.29 (1.78–42.81)
|
1
|
|
Equipment/technology
|
18.18 (8.19–32.71)
|
4.88 (0.60–16.53)
|
0.057
|
6.45 (0.79–21.42)
|
15 (5.71–29.84)
|
14.29 (1.78–42.81)
|
0.591
|
|
Other
|
2.27 (0.06–12.02)
|
4.88 (0.60–16.53)
|
0.607
|
3.23 (0.08–16.70)
|
5 (0.61–16.92)
|
0
|
1
|
|
Support groups
|
40.91 (26.34–56.75)
|
36.59 (22.12–53.06)
|
0.683
|
38.71 (21.85–57.81)
|
42.5 (27.04–59.11)
|
28.57 (8.39–58.10)
|
0.655
|
|
Unknown
|
6.82 (1.43–18.66)
|
9.76 (2.72–23.13)
|
0.707
|
9.68 (2.04–25.75)
|
5 (0.61–16.92)
|
14.29 (1.78–42.81)
|
0.516
|
|
Video games
|
9.09 (2.53–21.67)
|
0
|
0.117
|
6.45 (0.79–21.42)
|
2.5 (0.06–13.16)
|
7.14 (0.18–33.9)
|
0.502
|
- The overwhelming majority response to Question 4 was peer-support groups. Question 4 exhibited the largest group consensus. Percentages are out of total number of respondents (n = 85). The table values represent statistically significant differences in responses between either the age groups (2 bins) or between the motor function groups (3 bins) using a chi square or Fisher’s exact test. Highlighted findings were found to have statistical significance; asterisk (*) indicates significance by Fisher’s exact test and carrots (^) indicate significance by Chi2 test
