Table 1 Quality of life survey demographics
Total age cohort | Adolescents (12–18) | Young adults (19–24) | |
|---|---|---|---|
Total | 85 | 44 (52%) | 41 (48%) |
SMA type | |||
Type I | 6 (7%) | 4 (5%) | 2 (2%) |
Type II | 56 (66%) | 28 (33%) | 28 (33%) |
Type III | 23 (27%) | 12 (14%) | 11 (13%) |
Gender | |||
Female | 53 (62%) | 28 (33%) | 25 (29%) |
Male | 31 (37%) | 15 (18%) | 16 (19%) |
Non-binary | 1 (1%) | 1 (1%) | 0 |
Motor function at time of diagnosisa | |||
Non-independent sitter | 25 (29%) | 13 (15%) | 12 (14%) |
Sitter/non-independent walker | 37 (44%) | 20 (24%) | 17 (20%) |
Walker | 23 (27%) | 11 (13%) | 12 (14%) |
Motor function at time of survey completion* | |||
Non-independent sitter | 31 (37%) | 17 (20%) | 14 (17%) |
Sitter/non-independent walker | 40 (47%) | 19 (22%) | 21 (25%) |
Walker | 14 (16%) | 8 (9%) | 6 (7%) |