| |
Total age cohort
|
Adolescents (12–18)
|
Young adults (19–24)
|
|---|
|
Total
|
85
|
44 (52%)
|
41 (48%)
|
|
SMA type
| | | |
|
Type I
|
6 (7%)
|
4 (5%)
|
2 (2%)
|
|
Type II
|
56 (66%)
|
28 (33%)
|
28 (33%)
|
|
Type III
|
23 (27%)
|
12 (14%)
|
11 (13%)
|
|
Gender
| | | |
|
Female
|
53 (62%)
|
28 (33%)
|
25 (29%)
|
|
Male
|
31 (37%)
|
15 (18%)
|
16 (19%)
|
|
Non-binary
|
1 (1%)
|
1 (1%)
|
0
|
|
Motor function at time of diagnosisa
| | | |
|
Non-independent sitter
|
25 (29%)
|
13 (15%)
|
12 (14%)
|
|
Sitter/non-independent walker
|
37 (44%)
|
20 (24%)
|
17 (20%)
|
|
Walker
|
23 (27%)
|
11 (13%)
|
12 (14%)
|
|
Motor function at time of survey completion*
| | | |
|
Non-independent sitter
|
31 (37%)
|
17 (20%)
|
14 (17%)
|
|
Sitter/non-independent walker
|
40 (47%)
|
19 (22%)
|
21 (25%)
|
|
Walker
|
14 (16%)
|
8 (9%)
|
6 (7%)
|
- 85 individuals responded to the QoL survey. Non-binary was included as a gender option, and describes individuals who identify with no one gender
- aMotor function abilities were divided into three categories: non-independent sitter (head control, maintain seated position supported), sitter/non-independent walker (maintain seated position unsupported, crawl, cruise), and walkers (walk independently). All demographic information was self-identified. All percentages are based on the total surveyed population of 85 respondents
