TY - JOUR AU - Mayrides, Mo AU - Ruiz de Castilla, Eva Maria AU - Szelepski, Silvina PY - 2020 DA - 2020/02/27 TI - A civil society view of rare disease public policy in six Latin American countries JO - Orphanet Journal of Rare Diseases SP - 60 VL - 15 IS - 1 AB - Patients with rare diseases across the world struggle to access timely diagnosis and state-of-the-art treatment and management of their conditions. Several recently published reviews highlight the importance of country efforts to address rare diseases and orphan drugs policy comprehensively. However, many of these reviews lack depth and detail at the local level, which we believe is necessary for rare disease advocates to identify and prioritize opportunities for strengthening each country’s policy framework. SN - 1750-1172 UR - https://doi.org/10.1186/s13023-020-1314-z DO - 10.1186/s13023-020-1314-z ID - Mayrides2020 ER -