Skip to main content

Table 2 Overview of assessments in the ECLip Registry

From: European lipodystrophy registry: background and structure

Identifying data
 date of birth
Basic medical data
 demographic data
 genetic information if available
 death (if applicable)
 informed consent
 family history
 local availability of biological samples
 hypothesis related questions
Data for each episode
 anthropometric data and vital signs
 adipose tissue
  skinfold values
  anatomical distribution of the lipoatrophic and lipohypertrophic regions
  analysis of body composition by dual-energy X-ray absorptiometry
 signs and symptoms in the following organ systems
  skin & appendages
  skull & face
  eyes & vision
  ears &hearing
  heart & vascular system
  abdomen & gastrointestinal organs
  kidney & renal function
  neuromuscular functions
  bones & joints
  reproductive health & pregnancy
  haematology & immune system
 psychosocial health
 metabolic system and complications of diabetes
 most recent clinical laboratory values