Table 2 Overview of assessments in the ECLip Registry
From: European lipodystrophy registry: background and structure
| Identifying data | |
| name | |
| date of birth | |
| Basic medical data | |
| gender | |
| demographic data | |
| diagnosis | |
| genetic information if available | |
| death (if applicable) | |
| informed consent | |
| family history | |
| local availability of biological samples | |
| hypothesis related questions | |
| Data for each episode | |
| anthropometric data and vital signs | |
| adipose tissue | |
| skinfold values | |
| anatomical distribution of the lipoatrophic and lipohypertrophic regions | |
| analysis of body composition by dual-energy X-ray absorptiometry | |
| signs and symptoms in the following organ systems | |
| skin & appendages | |
| skull & face | |
| thyroid | |
| eyes & vision | |
| nose | |
| ears &hearing | |
| mouth | |
| heart & vascular system | |
| abdomen & gastrointestinal organs | |
| kidney & renal function | |
| neuromuscular functions | |
| bones & joints | |
| reproductive health & pregnancy | |
| haematology & immune system | |
| psychosocial health | |
| metabolic system and complications of diabetes | |
| most recent clinical laboratory values | |
| medication |