From: European lipodystrophy registry: background and structure
Identifying data | |
name | |
date of birth | |
Basic medical data | |
gender | |
demographic data | |
diagnosis | |
genetic information if available | |
death (if applicable) | |
informed consent | |
family history | |
local availability of biological samples | |
hypothesis related questions | |
Data for each episode | |
anthropometric data and vital signs | |
adipose tissue | |
skinfold values | |
anatomical distribution of the lipoatrophic and lipohypertrophic regions | |
analysis of body composition by dual-energy X-ray absorptiometry | |
signs and symptoms in the following organ systems | |
skin & appendages | |
skull & face | |
thyroid | |
eyes & vision | |
nose | |
ears &hearing | |
mouth | |
heart & vascular system | |
abdomen & gastrointestinal organs | |
kidney & renal function | |
neuromuscular functions | |
bones & joints | |
reproductive health & pregnancy | |
haematology & immune system | |
psychosocial health | |
metabolic system and complications of diabetes | |
most recent clinical laboratory values | |
medication |