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Table 3 Reasons why the POs were not in favour of screening

From: Survey on patients’ organisations’ knowledge and position paper on screening for inherited neuromuscular diseases in Europe

Country Absence of disease-modifying treatment Personal, cultural or religious beliefs Lack of reimbursement Pricy/ impossible mortgage/insurance
Poland 1 3 1 1
Spain 2 1 1 5
  1. Answers ranged from 1 to 5. 1 being the most important reason, 5 the least