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Table 3 Reasons why the POs were not in favour of screening

From: Survey on patients’ organisations’ knowledge and position paper on screening for inherited neuromuscular diseases in Europe

Country

Absence of disease-modifying treatment

Personal, cultural or religious beliefs

Lack of reimbursement

Pricy/ impossible mortgage/insurance

Poland

1

3

1

1

Spain

2

1

1

5

  1. Answers ranged from 1 to 5. 1 being the most important reason, 5 the least