Fig. 2

Legend: Number of responses per type of patient organisation. Umbrella Org.—“all-neuromuscular diseases organisations”; DMD/BMD Duchenne and Becker muscular dystrophy organisations, SMA spinal muscular atrophy organisations, LGMD limb girdle muscular dystrophies organisation, CMD congenital muscular dystrophies organisations, GNE GNE myopathy organisation (GNEM)