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Table 2 Demographic characteristics for SMA patients and caregivers (N = 101)

From: Treatment preference among patients with spinal muscular atrophy (SMA): a discrete choice experiment

 

Patient (n = 65)

Patient represented by caregiver (n = 36)

Caregiver (n = 36)

Age, years (SD)

36 (12.1)

10 (12.2)

38 (10.9)

Age range, years

18 to 67

0.2 to 42

23 to 69

Gender, n (%)

   

 Male

18 (27.7)

17 (47.2)

 

 Female

46 (70.8)

19 (52.8)

 

 Prefer not to answer

01 (01.5)

  

Race, n (%)

   

 White

56 (86.2)

26 (72.2)

 

 Black

02 (03.1)

04 (11.1)

 

 Asian

06 (09.2)

01 (02.8)

 

 Don't know/prefer not to answer

01 (01.5)

05 (13.9)

 

Hispanic or Latino, n (%)

   

 Yes

03 (04.6)

13 (36.1)

 

 No

60 (92.3)

22 (61.1)

 

 Don't know/prefer not to answer

02 (03.1)

01 (02.8)

 

Marital Status, n (%)

   

 Single

40 (61.5)

 

07 (19.4)

 Married

22 (33.8)

 

28 (77.8)

 Separated/divorced/widowed

03 (04.6)

 

01 (02.8)

Family income in last 12 months, n (%)

   

 $100,000 or more

16 (24.6)

 

06 (16.7)

 $75,000 to $99,999

05 (07.7)

 

05 (13.9)

 $50,000 to $74,999

11 (16.9)

 

11 (30.6)

 $25,000 to $49,999

09 (13.8)

 

06 (16.6)

 Less than $25,000

14 (21.5)

 

07 (19.4)

 Don't know/prefer not to answer

10 (15.4)

 

01 (02.8)