How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

Table 2 Access to a specialist centre/who coordinates care

	Who coordinates the patient’s care?			Total
	Patient/carer coordinates care	Patient/carer coordinates care with professional	Professional/service coordinates care	Total
Does the patient access a specialist centre?
Yes	3	0	4	7
No	4	2	0	6
Don’t know	2	0	0	2
Total	9	2	4	15

ISSN: 1750-1172