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Table 1 Participants’ characteristics

From: How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

 

Patients

Carers

Total

Parents of children

Partner/spouse of adult patient

Diagnosed

5

4

2

11

Undiagnosed

2

2

0

4

Total

7

6

2

15