Table 1 Sociodemographic and disease-related characteristics of sample including N = 304 patients with rare diseases (Mage = 44.2, SD = 12.8, range 16–74)
From: Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study
Variable | Absolute frequency | Percentage (95% CI) | |
|---|---|---|---|
Gender | |||
Female | 248 | 81.6 (77.2, 86.0) | |
Male | 56 | 18.4 (14.0, 28.8) | |
Nationality | |||
German | 289 | 95.1 (92.7, 97.5) | |
Other | 15 | 4.9 (2.5, 7.3) | |
Relationship status | |||
Single | 105 | 34.5 (29.2, 39.8) | |
Married | 139 | 45.7 (40.1, 51.3) | |
Separated | 11 | 3.6 (1.5, 5.7) | |
Divorced | 37 | 12.2 (8.5, 15.9) | |
Widowed | 3 | 1.0 (0.1, 2.1) | |
Other | 9 | 3.0 (1.1, 4.9) | |
Living situation | |||
Alone | 70 | 23.0 (18.3, 27.7) | |
With partner | 110 | 36.2 (30.8, 41.6) | |
Alone with children | 18 | 5.9 (3.3, 8.6) | |
With partner and children | 64 | 21.1 (16.5, 25.7) | |
With parents | 24 | 7.9 (4.9, 10.9) | |
In institution | 1 | 0.3 (0.3, 0.9) | |
Other | 17 | 5.6 (3.0, 8.2) | |
Professional status | |||
Self-employed | 13 | 4.3 (2.0, 6.6) | |
Civil servant | 6 | 2.0 (0.4, 3.6) | |
Employed | 121 | 39.8 (34.3, 45.3) | |
Househusband/-wife | 14 | 4.6 (2.3, 7.0) | |
Seeking work | 17 | 5.6 (3.0, 8.2) | |
Pension (early,-age,-widow-) | 26 | 8.6 (5.5, 11.8) | |
PENSION (occupational disability/disability) | 54 | 17.8 (13.5, 22.1) | |
Student | 25 | 8.2 (5.1, 11.3) | |
Maternity/parental leave | 2 | 0.7 (0.2, 1.6) | |
Currently on sick leave | 4 | 1.3 (0.0, 2.6) | |
Other | 22 | 7.3 (4.4, 10.2) | |
Employment status | |||
Full-time | 120 | 39.5 (34.0, 45.0) | |
Part-time (80–99%) | 20 | 6.6 (3.8, 3.4) | |
Part-time (60–79%) | 21 | 6.9 (4.1, 9.8) | |
Part-time (40–59%) | 18 | 5.9 (3.3, 8.6) | |
Part-time (< 40%) | 18 | 5.9 (3.3, 8.6) | |
Other | 107 | 35.2 (29.8, 40.6) | |
Family members diagnosed with the same illness | |||
62 | 20.4 (15.9, 24.9) | ||
Symptoms of disease visible | |||
133 | 43.8 (38.2, 49.4) | ||
At least one self-reported comorbid disease | |||
209 | 68.8 (63.6, 74.0) | ||
Psychotherapeutic treatment | |||
Ever | 142 | 46.7 (41.1, 52.3) | |
In the past | 101 | 33.2 (27.9, 38.5) | |
Currently | 61 | 20.1 (15.6, 24.6) | |
M | SD | Range | |
|---|---|---|---|
How many days have you been unable to do your job (household, school, everyday life) in the past two weeks due to illness? | 2.48 | 4.15 | 0–14 |
Number of consultations of a doctor in last four weeks | 1.96 | 1.81 | 0–12 |