TY - JOUR AU - Cicardi, M. AU - Aberer, W. AU - Banerji, A. AU - Bas, M. AU - Bernstein, J. A. AU - Bork, K. PY - 2014 DA - 2014// TI - Classification, diagnosis, and approach to treatment for angioedema: consensus report from the Hereditary Angioedema International Working Group JO - Allergy VL - 69 UR - https://doi.org/10.1111/all.12380 DO - 10.1111/all.12380 ID - Cicardi2014 ER - TY - JOUR AU - Lumry, W. R. AU - Castaldo, A. J. AU - Vernon, M. K. AU - Blaustein, M. B. AU - Wilson, D. A. AU - Horn, P. T. PY - 2010 DA - 2010// TI - The humanistic burden of hereditary angioedema: impact on health-related quality of life, productivity, and depression JO - Allergy Asthma Proc VL - 31 UR - https://doi.org/10.2500/aap.2010.31.3394 DO - 10.2500/aap.2010.31.3394 ID - Lumry2010 ER - TY - JOUR AU - Wilson, D. A. AU - Bork, K. AU - Shea, E. P. AU - Rentz, A. M. AU - Blaustein, M. B. AU - Pullman, W. E. PY - 2010 DA - 2010// TI - Economic costs associated with acute attacks and long-term management of hereditary angioedema JO - Ann Allergy Asthma Immunol VL - 104 UR - https://doi.org/10.1016/j.anai.2010.01.024 DO - 10.1016/j.anai.2010.01.024 ID - Wilson2010 ER - TY - JOUR AU - Aygören-Pürsün, E. AU - Bygum, A. AU - Beusterien, K. AU - Hautamaki, E. AU - Sisic, Z. AU - Wait, S. PY - 2014 DA - 2014// TI - Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe JO - Orphanet J Rare Dis VL - 9 UR - https://doi.org/10.1186/1750-1172-9-99 DO - 10.1186/1750-1172-9-99 ID - Aygören-Pürsün2014 ER - TY - JOUR AU - Nordenfelt, P. AU - Dawson, S. AU - Wahlgren, C. F. AU - Lindfors, A. AU - Mallbris, L. AU - Björkander, J. PY - 2014 DA - 2014// TI - Quantifying the burden of disease and perceived health state in patients with hereditary angioedema in Sweden JO - Allergy Asthma Proc VL - 35 UR - https://doi.org/10.2500/aap.2014.35.3738 DO - 10.2500/aap.2014.35.3738 ID - Nordenfelt2014 ER - TY - JOUR AU - Engel-Yeger, B. AU - Farkas, H. AU - Kivity, S. AU - Veszeli, N. AU - Kőhalmi, K. V. AU - Kessel, A. PY - 2017 DA - 2017// TI - Health-related quality of life among children with hereditary angioedema JO - Pediatr Allergy Immunol VL - 28 UR - https://doi.org/10.1111/pai.12712 DO - 10.1111/pai.12712 ID - Engel-Yeger2017 ER - TY - JOUR AU - Huang, S. W. PY - 2004 DA - 2004// TI - Results of an on-line survey of patients with hereditary angioedema JO - Allergy Asthma Proc VL - 25 ID - Huang2004 ER - TY - JOUR AU - Bygum, A. PY - 2014 DA - 2014// TI - Hereditary angioedema—consequences of a new treatment paradigm in Denmark JO - Acta Derm Venereol VL - 94 UR - https://doi.org/10.2340/00015555-1743 DO - 10.2340/00015555-1743 ID - Bygum2014 ER - TY - JOUR AU - Fouche, A. AU - Saunders, E. F. AU - Craig, T. PY - 2014 DA - 2014// TI - Depression and anxiety in patients with hereditary angioedema JO - Ann Allergy Asthma Immunol VL - 112 UR - https://doi.org/10.1016/j.anai.2013.05.028 DO - 10.1016/j.anai.2013.05.028 ID - Fouche2014 ER - TY - JOUR AU - Nordenfelt, P. AU - Nilsson, M. AU - Lindfors, A. AU - Wahlgren, C. F. AU - Björkander, J. PY - 2017 DA - 2017// TI - Health-related quality of life in relation to disease activity in adults with hereditary angioedema in Sweden JO - Allergy Asthma Proc VL - 38 UR - https://doi.org/10.2500/aap.2017.38.4087 DO - 10.2500/aap.2017.38.4087 ID - Nordenfelt2017 ER - TY - JOUR AU - Bouillet, L. AU - Launay, D. AU - Fain, O. AU - Boccon-Gibod, I. AU - Laurent, J. AU - Martin, L. PY - 2013 DA - 2013// TI - Hereditary angioedema with C1 inhibitor deficiency: clinical presentation and quality of life of 193 French patients JO - Ann Allergy Asthma Immunol VL - 111 UR - https://doi.org/10.1016/j.anai.2013.07.012 DO - 10.1016/j.anai.2013.07.012 ID - Bouillet2013 ER - TY - JOUR AU - Bygum, A. AU - Andersen, K. E. AU - Mikkelsen, C. S. PY - 2009 DA - 2009// TI - Self-administration of intravenous C1-inhibitor therapy for hereditary angioedema and associated quality of life benefits JO - Eur J Dermatol VL - 19 UR - https://doi.org/10.1684/ejd.2008.0603 DO - 10.1684/ejd.2008.0603 ID - Bygum2009 ER - TY - JOUR AU - Bewtra, A. K. AU - Levy, R. J. AU - Jacobson, K. W. AU - Wasserman, R. L. AU - Machnig, T. AU - Craig, T. J. PY - 2012 DA - 2012// TI - C1-inhibitor therapy for hereditary angioedema attacks: prospective patient assessments of health-related quality of life JO - Allergy Asthma Proc VL - 33 UR - https://doi.org/10.2500/aap.2012.33.3597 DO - 10.2500/aap.2012.33.3597 ID - Bewtra2012 ER - TY - JOUR AU - Gomide, M. A. AU - Toledo, E. AU - Valle, S. O. AU - Campos, R. A. AU - França, A. T. AU - Gomez, N. P. PY - 2013 DA - 2013// TI - Hereditary angioedema: quality of life in Brazilian patients JO - Clinics (Sao Paulo) VL - 68 UR - https://doi.org/10.6061/clinics/2013(01)OA13 DO - 10.6061/clinics/2013(01)OA13 ID - Gomide2013 ER - TY - JOUR AU - Bygum, A. AU - Aygören-Pürsün, E. AU - Beusterien, K. AU - Hautamaki, E. AU - Sisic, Z. AU - Wait, S. PY - 2015 DA - 2015// TI - Burden of illness in hereditary angioedema: a conceptual model JO - Acta Derm Venereol VL - 95 UR - https://doi.org/10.2340/00015555-2014 DO - 10.2340/00015555-2014 ID - Bygum2015 ER - TY - JOUR AU - Banerji, A. PY - 2013 DA - 2013// TI - The burden of illness in patients with hereditary angioedema JO - Ann Allergy Asthma Immunol VL - 111 UR - https://doi.org/10.1016/j.anai.2013.08.019 DO - 10.1016/j.anai.2013.08.019 ID - Banerji2013 ER - TY - JOUR AU - Aygören-Pürsün, E. AU - Bygum, A. AU - Beusterien, K. AU - Hautamaki, E. AU - Sisic, Z. AU - Boysen, H. B. PY - 2016 DA - 2016// TI - Estimation of EuroQol 5-dimensions health status utility values in hereditary angioedema JO - Patient Prefer Adherence VL - 10 UR - https://doi.org/10.2147/PPA.S100383 DO - 10.2147/PPA.S100383 ID - Aygören-Pürsün2016 ER - TY - JOUR AU - Cardarelli, W. PY - 2013 DA - 2013// TI - Managed care implications of hereditary angioedema JO - Am J Manag Care VL - 19 ID - Cardarelli2013 ER - TY - JOUR AU - Longhurst, H. AU - Bygum, A. PY - 2016 DA - 2016// TI - The humanistic, societal, and pharmaco-economic burden of angioedema JO - Clin Rev Allergy Immunol VL - 51 UR - https://doi.org/10.1007/s12016-016-8575-2 DO - 10.1007/s12016-016-8575-2 ID - Longhurst2016 ER - TY - JOUR AU - Jindal, N. L. AU - Harniman, E. AU - Prior, N. AU - Perez-Fernandez, E. AU - Caballero, T. AU - Betschel, S. PY - 2017 DA - 2017// TI - Hereditary angioedema: health-related quality of life in Canadian patients as measured by the SF-36 JO - Allergy Asthma Clin Immunol VL - 13 UR - https://doi.org/10.1186/s13223-016-0176-3 DO - 10.1186/s13223-016-0176-3 ID - Jindal2017 ER - TY - JOUR AU - Maurer, M. AU - Magerl, M. AU - Ansotegui, I. AU - Aygören-Pürsün, E. AU - Betschel, S. AU - Bork, K. PY - 2018 DA - 2018// TI - The international WAO/EAACI guideline for the management of hereditary angioedema—the 2017 revision and update JO - Allergy VL - 73 UR - https://doi.org/10.1111/all.13384 DO - 10.1111/all.13384 ID - Maurer2018 ER - TY - JOUR AU - Weller, K. AU - Krüger, R. AU - Maurer, M. AU - Magerl, M. PY - 2016 DA - 2016// TI - Subcutaneous self-injections of C1 inhibitor: an effective and safe treatment in a patient with hereditary angio-oedema JO - Clin Exp Dermatol VL - 41 UR - https://doi.org/10.1111/ced.12681 DO - 10.1111/ced.12681 ID - Weller2016 ER - TY - JOUR AU - Zuraw, B. L. AU - Cicardi, M. AU - Longhurst, H. J. AU - Bernstein, J. A. AU - Li, H. H. AU - Magerl, M. PY - 2015 DA - 2015// TI - Phase II study results of a replacement therapy for hereditary angioedema with subcutaneous C1-inhibitor concentrate JO - Allergy VL - 70 UR - https://doi.org/10.1111/all.12658 DO - 10.1111/all.12658 ID - Zuraw2015 ER - TY - JOUR AU - Longhurst, H. AU - Cicardi, M. AU - Craig, T. AU - Bork, K. AU - Grattan, C. AU - Baker, J. PY - 2017 DA - 2017// TI - Prevention of hereditary angioedema attacks with a subcutaneous C1 Inhibitor JO - N Engl J Med VL - 376 UR - https://doi.org/10.1056/NEJMoa1613627 DO - 10.1056/NEJMoa1613627 ID - Longhurst2017 ER - TY - JOUR AU - Lumry, W. R. AU - Craig, T. AU - Zuraw, B. AU - Longhurst, H. AU - Baker, J. AU - Li, H. H. PY - 2018 DA - 2018// TI - Health-related quality of life with subcutaneous C1-inhibitor for prevention of attacks of hereditary angioedema JO - J Allergy Clin Immunol Pract VL - 6 UR - https://doi.org/10.1016/j.jaip.2017.12.039 DO - 10.1016/j.jaip.2017.12.039 ID - Lumry2018 ER - TY - JOUR AU - Craig, T. AU - Zuraw, B. AU - Longhurst, H. AU - Cicardi, M. AU - Bork, K. AU - Grattan, C. PY - 2019 DA - 2019// TI - Long-term outcomes with subcutaneous C1-inhibitor replacement therapy for prevention of hereditary angioedema attacks JO - J Allergy Clin Immunol Pract VL - 7 UR - https://doi.org/10.1016/j.jaip.2019.01.054 DO - 10.1016/j.jaip.2019.01.054 ID - Craig2019 ER - TY - BOOK PY - 2015 DA - 2015// TI - EQ-5D-3L user guide, version 5.1 PB - EuroQol Research Foundation CY - Rotterdam ID - ref27 ER - TY - JOUR AU - Zigmond, A. S. AU - Snaith, R. P. PY - 1983 DA - 1983// TI - The hospital anxiety and depression scale JO - Acta Psychiatr Scand VL - 67 UR - https://doi.org/10.1111/j.1600-0447.1983.tb09716.x DO - 10.1111/j.1600-0447.1983.tb09716.x ID - Zigmond1983 ER - TY - JOUR AU - Reilly, M. C. AU - Zbrozek, A. S. AU - Dukes, E. M. PY - 1993 DA - 1993// TI - The validity and reproducibility of a work productivity and activity impairment instrument JO - Pharmacoeconomics VL - 4 UR - https://doi.org/10.2165/00019053-199304050-00006 DO - 10.2165/00019053-199304050-00006 ID - Reilly1993 ER - TY - JOUR AU - Atkinson, M. J. AU - Sinha, A. AU - Hass, S. L. AU - Colman, S. S. AU - Kumar, R. N. AU - Brod, M. PY - 2004 DA - 2004// TI - Validation of a general measure of treatment satisfaction, the Treatment Satisfaction Questionnaire for Medication (TSQM), using a national panel study of chronic disease JO - Health Qual Life Outcomes VL - 2 UR - https://doi.org/10.1186/1477-7525-2-12 DO - 10.1186/1477-7525-2-12 ID - Atkinson2004 ER - TY - JOUR AU - Weller, K. AU - Groffik, A. AU - Magerl, M. AU - Tohme, N. AU - Martus, P. AU - Krause, K. PY - 2012 DA - 2012// TI - Development and construct validation of the angioedema quality of life questionnaire JO - Allergy VL - 67 UR - https://doi.org/10.1111/all.12007 DO - 10.1111/all.12007 ID - Weller2012 ER - TY - JOUR AU - Prior, N. AU - Remor, E. AU - Pérez-Fernández, E. AU - Caminoa, M. AU - Gómez-Traseira, C. AU - Gayá, F. PY - 2016 DA - 2016// TI - Psychometric field study of hereditary angioedema quality of life questionnaire for adults: HAE-QoL JO - J Allergy Clin Immunol Pract VL - 4 UR - https://doi.org/10.1016/j.jaip.2015.12.010 DO - 10.1016/j.jaip.2015.12.010 ID - Prior2016 ER - TY - JOUR AU - Norman, G. R. AU - Sloan, J. A. AU - Wyrwich, K. W. PY - 2003 DA - 2003// TI - Interpretation of changes in health-related quality of life: the remarkable universality of half a standard deviation JO - Med Care VL - 41 ID - Norman2003 ER - TY - CHAP AU - Janssen, B. AU - Szende, A. ED - Szende, A. ED - Janssen, B. ED - Cabases, J. PY - 2014 DA - 2014// TI - Population norms for the EQ-5D BT - Self-reported population health: an international perspective based on EQ-5D PB - Springer CY - Dordrecht ID - Janssen2014 ER - TY - JOUR AU - Weller, K. AU - Magerl, M. AU - Peveling-Oberhag, A. AU - Martus, P. AU - Staubach, P. AU - Maurer, M. PY - 2016 DA - 2016// TI - The Angioedema Quality of Life Questionnaire (AE-QoL) - Assessment of sensitivity to change and minimal clinically important difference JO - Allergy. VL - 71 UR - https://doi.org/10.1111/all.12900 DO - 10.1111/all.12900 ID - Weller2016 ER - TY - JOUR AU - Weller, K. AU - Maurer, M. AU - Fridman, M. AU - Supina, D. AU - Schranz, J. AU - Magerl, M. PY - 2017 DA - 2017// TI - Health-related quality of life with hereditary angioedema following prophylaxis with subcutaneous C1-inhibitor with recombinant hyaluronidase JO - Allergy Asthma Proc. VL - 38 UR - https://doi.org/10.2500/aap.2017.38.4025 DO - 10.2500/aap.2017.38.4025 ID - Weller2017 ER - TY - STD TI - Lanadelumab (Takhzyro ®) German Dossier. Accessed from: https://www.g-ba.de/downloads/92-975-2914/2019-02-01_Modul4A_Lanadelumab.pdf. UR - https://www.g-ba.de/downloads/92-975-2914/2019-02-01_Modul4A_Lanadelumab.pdf ID - ref37 ER - TY - JOUR AU - Zanichelli, A. AU - Azin, G. M. AU - Cristina, F. AU - Vacchini, R. AU - Caballero, T. PY - 2018 DA - 2018// TI - Safety, effectiveness, and impact on quality of life of self-administration with plasma-derived nanofiltered C1 inhibitor (Berinert®) in patients with hereditary angioedema: the SABHA study JO - Orphanet J Rare Dis. VL - 13 UR - https://doi.org/10.1186/s13023-018-0797-3 DO - 10.1186/s13023-018-0797-3 ID - Zanichelli2018 ER - TY - JOUR AU - Squeglia, V. AU - Barbarino, A. AU - Bova, M. AU - Gravante, C. AU - Petraroli, A. AU - Spadaro, G. PY - 2016 DA - 2016// TI - High attack frequency in patients with angioedema due to C1-inhibitor deficiency is a major determinant in switching to home therapy: a real-life observational study JO - Orphanet J Rare Dis. VL - 11 UR - https://doi.org/10.1186/s13023-016-0518-8 DO - 10.1186/s13023-016-0518-8 ID - Squeglia2016 ER - TY - JOUR AU - McClure, N. S. AU - Sayah, F. A. AU - Xie, F. AU - Luo, N. AU - Johnson, J. A. PY - 2017 DA - 2017// TI - Instrument-defined estimates of the minimally important difference for EQ-5D-5L index scores JO - Value Health. VL - 20 UR - https://doi.org/10.1016/j.jval.2016.11.015 DO - 10.1016/j.jval.2016.11.015 ID - McClure2017 ER - TY - JOUR AU - White, D. AU - Leach, C. AU - Sims, R. AU - Atkinson, M. AU - Cottrell, D. PY - 1999 DA - 1999// TI - Validation of the Hospital Anxiety and Depression Scale for use with adolescents JO - Br J Psych. VL - 175 UR - https://doi.org/10.1192/bjp.175.5.452 DO - 10.1192/bjp.175.5.452 ID - White1999 ER -