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Table 2 Professions correspondents would like to see when they visit a centre of expertise or when they receive an extensive review

From: Patient’s thoughts and expectations about centres of expertise for PKU

 

When you visit a centre of expertise (n = 83) (%)

When you receive an extensive review (n = 67) (%)

Physician

84.3

83.6

Dietician

77.1

79.1

Psychologist (for discussing any problems or mental health issues)

48.2

50.7

Social worker

15.7

10.4

Neuropsychologist (for brain function tests such as IQ)

51.8

59.7

Not applicable, I am not interested in visiting a PKU centre of expertise/an extensive review

3.6

4.5

Other namely

7.2

7.5

  1. Multiple answer options were possible
  2. 1Other namely: Geneticist, Dexa-scan, obstetrician, sports physician