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Table 2 Number and percentage of respondents that prioritized each theme as most important, divided in professionals and patient representatives

From: Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases

 

Professionals

Patient representatives

n

%

n

%

Total

61

100

95

100

The origins of disease

18

29.5

15

15.8

Disease definitions and diagnosis

10

16.4

8

8.4

Developing therapies and preventive strategies

16

26.2

58

61.1

Disease mechanisms and models

9

14.8

3

3.2

Healthcare and social care

8

13.1

11

11.6