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Table 1 Literature search parameters

From: Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines

Databases/engines

Key terms and search

1. EbscoHost

2. PubMed/medline

3. Google scholar

Inclusive searches completed from October 2018 to June 2020

No restrictions for:

Study type

Language

Interventions

Inclusion Criteria

Human studies only, Relevant to sexual or reproductive health

Exclusion Criteria

If “sex” referred to physiological/biologically male/female participants/gender rather than sexual health/activity

Psychosocial domain

Population: Epidermolysis bullosa

AND

“Sex” OR “Sexuality” OR “Intimacy” OR “Intercourse” OR “Puberty” OR “Sex Education” OR “Body Image” OR “Confidence” OR “Interpersonal Relations” OR “Sexual Behaviour” OR “Health Knowledge Attitudes Practice” OR “Adolescent Behaviour”

Mechanical domain

Population: Epidermolysis bullosa

AND

“Sex” OR “Sexuality” OR “Intimacy” OR “Intercourse” OR “Masturbation” OR “Puberty” OR “Safe Sex” OR “Sex Education”