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Table 6 Average scores of proxy-reported PedsQL 3.0 Neuromuscular Module across subgroups of clinical treatments (n = 87)

From: Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers: a Chinese cross-sectional study

 

Exercise training

Respiratory support

MDT

No (n = 49)

Yes (n = 38)

Effect size (d)

No (n = 64)

Yes (n = 23)

Effect size (d)

N-MS (n = 58)

MS but not U-MDT (n = 16)

U-MDT (n = 13)

Effect size(d)

N-MS versus MS but not U-MDT

N-MS versus U-MDT

MS but not U-MDT versus U-MDT

Total score

46.51 ± 12.83

57.61 ± 18.39

0.60

53.84 ± 16.62

44.43 ± 13.72

0.57

47.26 ± 13.45

60.44 ± 19.48a

58.46 ± 18.46b,c

0.68

0.61

0.10

Neuromuscular disease

45.38 ± 14.98

58.40 ± 17.38

0.75

54.62 ± 17.00

41.18 ± 14.02

0.79

47.26 ± 14.66

60.39 ± 20.11a

56.56 ± 19.67

0.65

0.47

0.19

Communication

71.09 ± 26.58

73.03 ± 30.17

0.06

72.14 ± 28.10

71.38 ± 28.52

0.03

71.41 ± 27.00

68.23 ± 35.12

78.85 ± 23.72

0.09

0.28

0.30

Family resources

36.02 ± 17.02

45.66 ± 28.19

0.34

40.55 ± 23.45

39.35 ± 21.97

0.05

33.10 ± 18.23

55.94 ± 25.44a

52.69 ± 25.38b,c

0.90

0.77

0.13

  1. Effect size (Cohen’s d) is interpreted as: 0.2 ≤ d < 0.5 small difference, 0.5 ≤ d < 0.8 moderate, and d ≥ 0.8 large
  2. N-MS no medical services, U-MDT under multidisciplinary team, MS but not U-MDT medical services but not under multidisciplinary team
  3. Values in the table are means, standard deviations and effect sized. Bold prints indicate P < 0.05
  4. aPost hoc significance between no medical services and medical services but not under MDT
  5. bPost hoc significance between no medical services and under MDT
  6. cPost hoc significance between medical services but not under MDT and under MDT
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172