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Table 6 Average scores of proxy-reported PedsQL 3.0 Neuromuscular Module across subgroups of clinical treatments (n = 87)

From: Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers: a Chinese cross-sectional study

  Exercise training Respiratory support MDT
No (n = 49) Yes (n = 38) Effect size (d) No (n = 64) Yes (n = 23) Effect size (d) N-MS (n = 58) MS but not U-MDT (n = 16) U-MDT (n = 13) Effect size(d)
N-MS versus MS but not U-MDT N-MS versus U-MDT MS but not U-MDT versus U-MDT
Total score 46.51 ± 12.83 57.61 ± 18.39 0.60 53.84 ± 16.62 44.43 ± 13.72 0.57 47.26 ± 13.45 60.44 ± 19.48a 58.46 ± 18.46b,c 0.68 0.61 0.10
Neuromuscular disease 45.38 ± 14.98 58.40 ± 17.38 0.75 54.62 ± 17.00 41.18 ± 14.02 0.79 47.26 ± 14.66 60.39 ± 20.11a 56.56 ± 19.67 0.65 0.47 0.19
Communication 71.09 ± 26.58 73.03 ± 30.17 0.06 72.14 ± 28.10 71.38 ± 28.52 0.03 71.41 ± 27.00 68.23 ± 35.12 78.85 ± 23.72 0.09 0.28 0.30
Family resources 36.02 ± 17.02 45.66 ± 28.19 0.34 40.55 ± 23.45 39.35 ± 21.97 0.05 33.10 ± 18.23 55.94 ± 25.44a 52.69 ± 25.38b,c 0.90 0.77 0.13
  1. Effect size (Cohen’s d) is interpreted as: 0.2 ≤ d < 0.5 small difference, 0.5 ≤ d < 0.8 moderate, and d ≥ 0.8 large
  2. N-MS no medical services, U-MDT under multidisciplinary team, MS but not U-MDT medical services but not under multidisciplinary team
  3. Values in the table are means, standard deviations and effect sized. Bold prints indicate P < 0.05
  4. aPost hoc significance between no medical services and medical services but not under MDT
  5. bPost hoc significance between no medical services and under MDT
  6. cPost hoc significance between medical services but not under MDT and under MDT
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Orphanet Journal of Rare Diseases

ISSN: 1750-1172