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Table 1 TPE for patients with systemic vasculitis

From: French recommendations for the management of systemic necrotizing vasculitides (polyarteritis nodosa and ANCA-associated vasculitides)

Issues to discuss

Educational objectives (non-exhaustive list)

What is systemic vasculitis?

Be able to describe its clinical manifestations

Understand the meaning of biological follow-up, know how to draw from its routine biological assessment the information necessary for following up on it

Be able to explain in words the mechanism of the disease (chronic disease, autoimmunity, inflammation of the vessel wall, type of vessel impaired, etc.)

Recognize the appearance of signs of clinical and biological activity of the disease and take appropriate action

Introduction to the importance of regular monitoring


Understand my treatment, be able to define the action and the side effects of my treatments, understand the side effects

Know how to use my treatment on a daily basis, understand the need to take my treatment regularly

Adaptation of the hygiene and diet rules when under corticosteroid therapy and/or an immunosuppressant treatment

Relapse of the disease

Know how to recognize a relapse of their illness

Recognize the clinical and biological signs of a relapse

Adapt their conduct and know how to call on the right resource/person

Identify triggers and learn how to prevent them (especially the importance of good compliance with the treatment)

Hygiene and diet measures

Know and adapt their diet when under corticosteroid therapy (no excess salt or sugar), adopt a balanced diet

Raise awareness of the risk of infection (reminder about vaccination, hygiene rules to avoid infectious contagion)

Living with it

Express their ideas and feelings about the disease

Normalize the experience of fatigue and better use their energy

Adopt measures centered on one’s well-being

Develop personal adaptation strategies

Develop the self-esteem damaged by illness (self-love, self-image, self-confidence)

Discover and mobilize resources that can be used to combat the difficulties encountered on a daily basis (psychologist, social workers, investigation into an MDPH file, etc.)

Express the impact of the disease on daily life and implement adaptation strategies