Fig. 1
From: Patient-reported outcomes on familial amyloid polyneuropathy (FAP)
Quality of life of patients with ATTR-FAP. a Patient reported health score on a scale of 1 to 6 (1 = poor health, 6 = excellent health). Base population: All respondents (n = 38). Question: In general, how would you rate your health? b PROMIS-10. The Global Physical Health score was generated by summing responses to Global03, Global06, Global07 rescored, and Global08 rescored. Conversion tables were used to convert the Global Physical Health raw scores into T-score values on an individual respondent. Base population: All respondents (n = 38). Questions: Global02: In general, how would you rate your quality of life? Global06: To what extent are you able to carry out your everyday physical activities such as walking, climbing stairs, carrying groceries or moving a chair? Global07: In the past 7 days, how would you rate your pain on average? (Scale from 0 to 10: 0 is no pain and 10 is the worst imaginable pain) and Global08: In the past 7 days, how would you rate your fatigue on average?