Table 1 Needs expressed by participants
From: 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)
Area | Request | N° |
|---|---|---|
Patient’s information-diary | Fever attacks, symptoms registration Repository of health information | 12 5 |
Community | Online communities - patient to patient Direct connection with physicians | 14 11 |
Personal agenda | Calendar: therapy, visits, exam scheduling alerts (appointments, deadlines, reminders) | 13 4 |
Clinical/practical information | Disease information Legal information-patients’ rights | 20 7 |