Table 2 Adherence issues summary
From: 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)
Specific issue | Impact | |
|---|---|---|
NP-C | Disease severity Behavioural and advanced disease related (non-ambulation): Biting through strap Mum of child with NP-C: “She loves the colour purple – it’s her favourite colour. But because of the soft texture of the strap she bites through it”. | Low engagement Data loss Required frequent replacement |
DMD | Behavioural issues Removing watch due to asymmetric design - touch on the skin Specialist physio: “Some of our DMD boys didn’t like the asymmetry. It is quite large on the wrist and the strap may need a shorter alternative for young children”. | Data loss |