Skip to main content

Table 2 Adherence issues summary

From: 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)

 Specific issueImpact
NP-CDisease severity
Behavioural and advanced disease related (non-ambulation):
Biting through strap
Mum of child with NP-C: “She loves the colour purple – it’s her favourite colour. But because of the soft texture of the strap she bites through it”.
Low engagement
Data loss
Required frequent replacement
DMDBehavioural issues
Removing watch due to asymmetric design - touch on the skin
Specialist physio: “Some of our DMD boys didn’t like the asymmetry. It is quite large on the wrist and the strap may need a shorter alternative for young children”.
Data loss