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Table 1 Correlation coefficient among HRQOL, characteristics, and needs (n = 28)

From: 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)

 SF-12 Subscale
PCSMCSRCS
Age0.090.11− 0.27
Duration from onset to diagnosis0.20.24− 0.27
Duration from onset to present0.370.310.12
Vignos Scale− 0.50.23− 0.09
Barthal Index0.73− 0.28− 0.18
Need components   
Control and careful coordination of patient’s position− 0.040.17− 0.02
Understanding of the disease and patient’s will and taste− 0.050.41− 0.2
Safe care0.07− 0.230.41
Smooth communication with others− 0.11− 0.150.41
  1. Spearman’s ρ; PCS, Physical component summary; MCS, Mental component summary; RCS, Role/Social component summary; Bold, p < .05