10th European Conference on Rare Diseases & Orphan Products (ECRD 2020)

Table 1 Correlation coefficient among HRQOL, characteristics, and needs (n = 28)

	SF-12 Subscale
	PCS	MCS	RCS
Age	0.09	0.11	− 0.27
Duration from onset to diagnosis	0.2	0.24	− 0.27
Duration from onset to present	−0.37	0.31	0.12
Vignos Scale	− 0.5	0.23	− 0.09
Barthal Index	0.73	− 0.28	− 0.18
Need components
① Control and careful coordination of patient’s position	− 0.04	0.17	− 0.02
② Understanding of the disease and patient’s will and taste	− 0.05	0.41	− 0.2
③ Safe care	0.07	− 0.23	0.41
④ Smooth communication with others	− 0.11	− 0.15	0.41

Spearman’s ρ; PCS, Physical component summary; MCS, Mental component summary; RCS, Role/Social component summary; Bold, p < .05

ISSN: 1750-1172