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Table 3 Highest reported symptom frequency, parent stress and child stress

From: Challenging behavior in mucopolysaccharidoses types I–III and day-to-day coping strategies: a cross sectional explorative study

MPS I

MPS II

MPS III

Overall

Symptom

n

Mean

Symptom

n

Mean

Symptom

n

Mean

Symptom

n

Mean

Highest reported symptom frequency

Sleep disturbance

8

1.4

Hyperactivity

8

3.5

Agitation

18

2.9

Agitation

34

2.4

Aggression

8

1.0

Agitation

8

3.5

Sleep disturbance

18

2.5

Sleep disturbance

34

2.2

Unusual affect

8

0.7

Sleep disturbance

8

2.3

Hyperactivity

18

2.2

Hyperactivity

34

2.1

Highest reported parent stress

Aggression

3

3.0

Aggression

4

3.9

Hyperactivity

10

4.0

Sleep disturbance

19

3.6

Sleep disturbance

3

2.6

Sleep disturbance

5

3.8

Sleep disturbance

11

3.8

Agitation

20

3.5

   

Agitation

6

3.2

Agitation

13

3.7

Hyperactivity

18

3.5

Highest reported child stress

Sleep disturbance

3

3.2

Sleep disturbance

5

2.6

Sleep disturbance

11

3.5

Sleep disturbance

19

3.2

Aggression

2

3.2

Agitation

6

2.0

Hyperactivity

10

2.8

Agitation

20

2.3

   

Hyperactivity

7

1.5

Unusual affect

11

2.5

Unusual affect

16

2.2

  1. Frequency in all individuals; mean parent stress and child stress if symptom is existent (at least with moderate frequency); mean values as reported in VAS (range 0.0–5.0). Single ratings are not listed
  2. Orality not included in this table as direct comparison may be misleading (see discussion)