1. My GD has restricted my education/job
|
80 (67%)
|
64 (94%)
|
17 (14%)
|
4 (6%)
|
19 (16%)
|
0
|
3 (2.5%)
|
0
|
1 (0.5%)
|
0
|
0.002
|
2. My GD has restricted fun activities with friends
|
94 (76%)
|
66 (97%)
|
14 (11%)
|
2 (3%)
|
12 (10%)
|
0
|
2 (1.5%)
|
0
|
1 (0.5%)
|
0
|
0.002
|
3. My GD has restricted my ability to have intimate relationships with my spouse/partner
|
94 (90%)
|
61 (100%)
|
6 (6.5%)
|
0
|
4 (2%)
|
0
|
0
|
0
|
0
|
0
|
0.001
|
4. My GD has restricted my ability to take part in hobbies and leisure activities
|
88 (71%)
|
61 (90%)
|
17 (14%)
|
4 (6%)
|
12 (10%)
|
3 (4%)
|
4 (3%)
|
0
|
2 (2%)
|
0
|
0.013
|
5. I have been concerned that I am an emotional burden to others because of my GD
|
94 (77%)
|
64 (95.5%)
|
13 (11%)
|
3 (4.5%)
|
10 (7.5%)
|
0
|
3 (2.5%)
|
0
|
2 (2%)
|
0
|
0.016
|
6. Because of my GD, I am concerned I will be at risk of bone disease
|
35 (28.5%)
|
38 (56%)
|
31 (25%)
|
16 (23.5%)
|
39 (32%)
|
13 (19%)
|
10 (8%)
|
0
|
8 (6.5%)
|
1 (1.5%)
|
0.007
|
7. Because of my GD, I am concerned I will be at risk of cancers
|
78 (65%)
|
49 (73%)
|
19 (16%)
|
10 (15%)
|
21 (17.5%)
|
7 (10.5%)
|
0
|
0
|
2 (1.5%)
|
1 (1.5%)
|
0.3
|
8. Because of my GD, I am concerned I will be at risk of Parkinson
|
43 (36%)
|
40 (59%)
|
25 (21%)
|
15 (22%)
|
46 (38%)
|
11 (16%)
|
3 (2.5%)
|
1 (1.5%)
|
3 (2.5%)
|
1 (1.5%)
|
0.1
|
9. Because of my GD, I am concerned I will be a financial burden
|
62 (50.5%)
|
48 (72%)
|
28 (23%)
|
11 (16%)
|
23 (19%)
|
8 (12%)
|
3 (2.5%)
|
0
|
6 (5%)
|
0
|
0.06
|
10. I am concerned I will not get the best therapy because of budget issues
|
72 (60%)
|
36 (54.5%)
|
23 (19.5%)
|
19 (29%)
|
16 (13%)
|
7 (10.5%)
|
6 (5%)
|
3 (4.5%)
|
3 (2.5%)
|
1 (1.5%)
|
0.9
|
11. I am concerned I may not have an expert physician for advice in the future
|
55 (45%)
|
32 (47%)
|
28 (23%)
|
19 (27.5%)
|
30 (24%)
|
12 (18%)
|
6 (5%)
|
4 (6%)
|
4 (3%)
|
1 (1.5%)
|
0.3
|
12. My non-Gaucher problems are more concerning than the Gaucher concerns
|
9 (7.5%)
|
5 (8%)
|
12 (10%)
|
7 (11%)
|
46 (38.5%)
|
19 (29%)
|
39 (33%)
|
17 (26%)
|
13 (11%)
|
17 (26%)
|
0.05
|