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Table 6 Recommendations for Routine Clinical Visit Follow up Through the Agesa

From: Similarities and differences in key diagnosis, treatment, and management approaches for PAH deficiency in the United States and Europe

ACMG/ Nutritional Management Guidelines (2014)

European Guidelines (2017)

Infants (0–1 year)- Monthly

Infants (0–1 year)- Every 2 months

Children (1–7 years)- Monthly to every 6 months

Children/Adolescents (1–18 years)-Twice yearly

(8–18 years)- Every 6–12 months

Adults (> 18 years)- Every 6–12 months

Adults- (> 18 years)- Once yearly

Pregnancy- Monthly to every trimester

Pregnancy- Once per trimester

Postpartum/lactating- 6 weeks postpartum then every 6 months

  1. a Increased visits due to circumstances or indications: adherence issue, treatment changes, new social circumstances