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Table 5 Summary for clinical usage – CDSSs using information retrieval

From: Diagnosis of Rare Diseases: a scoping review of clinical decision support systems

CDSSs using information retrieval • FindZebra [37]
• Taboada et al. [38]
• Garcelon et al. [36]
• Shen et al. [18]
Development status and system availability • FindZebra: Fully developed system. The system can be used online and free, no registration necessary
• Taboada et al.: Fully developed system. The system can be downloaded, no registration necessary
• Garcelon et al., Shen et al.: Clinical prototype. The system is not available for personal use
Type of clinical data • Taboada et al., FindZebra.: Literature databases
• Garcelon et al.: Clinical data
• Shen et al.: Literature databases and clinical data
Rare Diseases covered • Taboada et al., Shen et al., FindZebra: All rare diseases
• Garcelon et al.: Lowe Syndrome, Dystrophic Epidermolysis Bullosa, Activated PI3K delta Syndrome, Rett Syndrome, Dowling Meara
Data entry and integration • FindZebra: Data entry is only possible with forms
• Taboada et al.: Data upload is possible
• Shen et al.: No information available
• Garcelon et al.: ETL processes
Last software update • No information available
Clinical usage • FindZebra: No information available
• Taboada et al.: No information available
• Shen et al.,: No information available
• Garcelon et al.: 400.000 patients included