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Table 6 PROMIS Fatigue SF T-Scores by Functional Milestone and SMA Type

From: Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey

Functional Status

Type I

Type II

Type III

Permanent Ventilation

 n

17

2

0

 Mean (SD)

56.6 (10.2)

62 (11.3)

 

 Range

(42–71)

(54–70)

 

Non-sitters

 n

2

16

0

 Mean (SD)

56 (8.5)

57.8 (10.2)

 

 Range

(50–62)

(39–71)

 

Sitters

 n

5

55

7

 Mean (SD)

67.2 (9.5)

54.3 (9.0)

58.4 (5.4)

 Range

(54–80)

(34–74)

(48–65)

Walk with Support

 n

0

7

9

 Mean (SD)

 

56.4 (8.9)

57.7 (7.4)

 Range

 

(39–63)

(47–67)

Walk Independently

 n

0

3

20

 Mean (SD)

 

48.7 (8.4)

57.7 (9.4)

 Range

 

(39–54)

(34–73)

  1. -Only for unique individuals