Skip to main content

Table 6 PROMIS Fatigue SF T-Scores by Functional Milestone and SMA Type

From: Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey

Functional Status Type I Type II Type III
Permanent Ventilation
 n 17 2 0
 Mean (SD) 56.6 (10.2) 62 (11.3)  
 Range (42–71) (54–70)  
Non-sitters
 n 2 16 0
 Mean (SD) 56 (8.5) 57.8 (10.2)  
 Range (50–62) (39–71)  
Sitters
 n 5 55 7
 Mean (SD) 67.2 (9.5) 54.3 (9.0) 58.4 (5.4)
 Range (54–80) (34–74) (48–65)
Walk with Support
 n 0 7 9
 Mean (SD)   56.4 (8.9) 57.7 (7.4)
 Range   (39–63) (47–67)
Walk Independently
 n 0 3 20
 Mean (SD)   48.7 (8.4) 57.7 (9.4)
 Range   (39–54) (34–73)
  1. -Only for unique individuals