Table 14 Recommendations for clinical follow-up
From: Consensus based recommendations for diagnosis and medical management of Poland syndrome (sequence)
Grade | Consensus agreement | ||
|---|---|---|---|
R14.84 | Annual follow-up in case of surgery, especially in case of reconstruction with breast or pectoral implant (medical examination, ultrasound) is recommended | Definitely useful/strong literature | 100% |
R14.85 | Provide adequate explanations about the need to perform more or less invasive surgical adjustments to maintain the symmetry between the two hemilates in relation to the physiological changes of the body | GCP (no literature available) | 83,3% |
R14.86 | The patient with PS need to be assisted by a multidisciplinary team (coordinated by a Case Manager) tailored on the basis of the real needs of the patient/family. In general the team should involve the following specialists: Pediatric/thoracic surgeon, Plastic surgeon, Orthopedic surgeon, Hand surgeon, Radiologist, Geneticist, Psychologist, Cardiologist, Ophthalmologist, and other professionals as needed | Definitely useful/strong literature | 100% |
R14.87 | A strong relationship with Patients Advocacy Organizations, both national and international ones, is crucial for the best care of patients with PS | Definitely useful/strong literature | 100% |
R14.88 | If there is not functional limitations there is no need of surgery but patients could decide to undergo surgery for aesthetic reasons. | Definitely useful/strong literature | 70% |