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Table 13 PRO reporting timescales

From: A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis (Tay-Sachs and Sandhoff Disease)

Patient Reported Outcomes and Quality of Life Scales Timing Schedule (Days)
Tremor Impact Scale 8
Impact of Disease Scale 28
Impact on the family Scale 28
Wider impact Scale 28
Perceived Stress 60
Global Self Worth 60
Rosenberg Self Esteem 60
CHU9D 60
General Fatigue 31
Sleep/Rest Fatigue 31
Cognitive Fatigue 31