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Table 12 CHU 9D

From: A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis (Tay-Sachs and Sandhoff Disease)

CHU9D
Question Possible Answer Score of coded value
Worried I don’t feel worried today 0
I feel a little bit worried today 0.0227
I feel a bit worried today 0.0227
I feel quite worried today 0.0227
I feel very worried today 0.0227
Sad I don’t feel sad today 0
I feel a little bit sad today 0.042
I feel a bit sad today 0.0445
I feel quite sad today 0.0722
I feel very sad today 0.0722
Pain I don’t have any pain today 0
I don’t have any pain today 0.0322
I don’t have any pain today 0.0322
I don’t have any pain today 0.1245
I don’t have any pain today 0.1426
Tired I don’t feel tired today 0
I feel a little bit tired today 0.0479
I feel a bit tired today 0.0479
I feel quite tired today 0.0479
I feel very tired today 0.0479
Annoyed I don’t feel annoyed today 0
I feel a little bit annoyed today 0.0313
I feel a bit annoyed today 0.0313
I feel quite annoyed today 0.0313
I feel very annoyed today 0.0313
School Work/ Homework (such as reading, writing, doing lessons) I have no problems with my schoolwork/homework today 0
I have a few problems with my schoolwork/homework today 0.0487
I have some problems with my schoolwork/homework today 0.0487
I have many problems with my schoolwork/homework today 0.0656
I can’t do my schoolwork/homework today 0.0656
Sleep Last night I had no problems sleeping 0
Last night I had a few problems sleeping 0.0212
Last night I had some problems sleeping 0.0212
Last night I had many problems sleeping 0.0506
Last night I couldn’t sleep at all 0.0907
Daily routine (things like eating, having a bath/shower, getting dressed) I have no problems with my daily routine today 0
I have a few problems with my daily routine today 0.0371
I have some problems with my daily routine today 0.0612
I have many problems with my daily routine today 0.0699
I can’t do my daily routine today 0.093
Able to join in activities (things like playing out with your friends, doing sports, joining in things) I can join in with any activities today 0
I can join in with most activities today 0.0368
I can join in with some activities today 0.0368
I can join in with a few activities today 0.0368
I can join in with no activities today 0.1079