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Table 12 CHU 9D

From: A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis (Tay-Sachs and Sandhoff Disease)

CHU9D

Question

Possible Answer

Score of coded value

Worried

I don’t feel worried today

0

I feel a little bit worried today

0.0227

I feel a bit worried today

0.0227

I feel quite worried today

0.0227

I feel very worried today

0.0227

Sad

I don’t feel sad today

0

I feel a little bit sad today

0.042

I feel a bit sad today

0.0445

I feel quite sad today

0.0722

I feel very sad today

0.0722

Pain

I don’t have any pain today

0

I don’t have any pain today

0.0322

I don’t have any pain today

0.0322

I don’t have any pain today

0.1245

I don’t have any pain today

0.1426

Tired

I don’t feel tired today

0

I feel a little bit tired today

0.0479

I feel a bit tired today

0.0479

I feel quite tired today

0.0479

I feel very tired today

0.0479

Annoyed

I don’t feel annoyed today

0

I feel a little bit annoyed today

0.0313

I feel a bit annoyed today

0.0313

I feel quite annoyed today

0.0313

I feel very annoyed today

0.0313

School Work/ Homework (such as reading, writing, doing lessons)

I have no problems with my schoolwork/homework today

0

I have a few problems with my schoolwork/homework today

0.0487

I have some problems with my schoolwork/homework today

0.0487

I have many problems with my schoolwork/homework today

0.0656

I can’t do my schoolwork/homework today

0.0656

Sleep

Last night I had no problems sleeping

0

Last night I had a few problems sleeping

0.0212

Last night I had some problems sleeping

0.0212

Last night I had many problems sleeping

0.0506

Last night I couldn’t sleep at all

0.0907

Daily routine (things like eating, having a bath/shower, getting dressed)

I have no problems with my daily routine today

0

I have a few problems with my daily routine today

0.0371

I have some problems with my daily routine today

0.0612

I have many problems with my daily routine today

0.0699

I can’t do my daily routine today

0.093

Able to join in activities (things like playing out with your friends, doing sports, joining in things)

I can join in with any activities today

0

I can join in with most activities today

0.0368

I can join in with some activities today

0.0368

I can join in with a few activities today

0.0368

I can join in with no activities today

0.1079