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Table 3 HAM/TSP-bladder dysfunction symptom score (HAM-BDSS)

From: Creation and validation of a bladder dysfunction symptom score for HTLV-1-associated myelopathy/tropical spastic paraparesis

No

Symptom

Not at All

Less than 1 in 5 times

Less than half the time

About half the time

More than half the time

Almost always

1

In the past month, how often have you had to urinate less than every 2 h?

0

1

2

3

4

5

  

None

1 time

2 times

3 times

4 times

5 or more times

2

In the past month, how many times did you typically get up at night to urinate?

0

1

2

3

4

5

  

Not at all

Less than once a week

Once a week or more

About once a day

2–4 times a day

5 times a day or more

3

In the past week, how often do you have a sudden desire to urinate, which was difficult to defer?

0

1

2

3

4

5

4

In the past week, how often do you leak urine because you could not defer the sudden desire to urinate?

0

1

2

3

4

5

Score of storage symptoms

/20

  

Not at all

Less than 1 in 5 times

Less than half the time

About half the time

More than half the time

Almost always

5

In the past month, how often have you had the sensation of not completely emptying your bladder?

0

1

2

3

4

5

6

In the past month, when urinating, how often have you found yourself to have stopped and then resumed several times?

0

1

2

3

4

5

7

In the past month, how often have you had a weak urinary stream?

0

1

2

3

4

5

8

In the past month, how often have you had to strain to start urination?

0

1

2

3

4

5

Score of voiding symptoms

/20

Total score

/40

  1. Q1 is from I-PSS Q2; Q2 is from I-PSS Q7; Q3 is from OABSS Q3; Q4 is from OABSS Q4; Q5 is from I-PSS Q1; Q6 is from I-PSS Q3; Q7 is from I-PSS Q5; and Q8 is from I-PSS Q6