Fig. 1From: Profiling trial burden and patients’ attitudes to improve clinical research in epidermolysis bullosaGeneral health, quality of life, knowledge about clinical studies.Graphical presentation of patients’ answers (in percentage) to part one of the survey which includes questions addressing their general health, quality of life and knowledge about clinical studies. Mean values (Likert scale graded from 1 to 5) are crayoned. The numbers in the columns represent respondents for each optionBack to article page