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Table 5 Participants’ self-assessment of their knowledge about RD

From: Needs assessment study of rare diseases education for nurses and nursing students in Poland

Items Students
N(%)
Nurses
N(%)
p
How would you rate your knowledge about rare diseases?    0.006
 Very good 4 (3.5) 0  
 Fair enough 2 (1.8) 4 (2.6)  
 Insufficient 46 (40.7) 87 (56.1)  
 Very poor 61 (54) 64 (41.3)  
Do you feel prepared for caring for a patient with a rare disease?    0.0000
 Definitely 0 0  
 Rather yes 3 (2.7) 26 (16.8)  
 Rather not 51 (45.1) 72 (46.4)  
 Definitely not 44 (38.9) 48 (31)  
 I do not know 15 (13.3) 9 (5.8)  
Would you like to broaden your knowledge about rare diseases?    0.15
 Yes 94 (83.2) 141 (91)  
 No 3 (2.7) 3 (1.9)  
 I do not know 16 (14.2) 11 (7.1)  
Do you think that there should be a mandatory course on rare diseases in the medical curricula?    0.0000
 Definitely 26 (23) 61 (39.4)  
 Rather yes 60 (53.1) 71 (45.8)  
 Rather not 12 (10.6) 10 (6.4)  
 Definitely not 2 (1.8) 0  
 I do not know 13 (11.5) 13 (8.4)  
Did you / do you have any classes about rare disease during your studies?    0.29
 Yes 36 (31.9) 57 (36.8)  
 No 60 (53.1) 84 (54.2)  
 I do not know 17 (15) 14 (9)  
Where do you / did you get your knowledge about rare diseases from?    0
 Mandatory courses at the university 12 (10.6) 27 (17.4)  
 Facultative courses at the university 9 (8) 10 (6.5)  
 Scientific literature and research 15 (13.3) 34 (21.9)  
 Scientific conferences, symposia 7 (6.2) 23 (14.8)  
 Internet 62 (54.9) 123 (79.4)  
 Other 3 (2.7) 13 (8.4)  
 I do not search for such information 27 (23.9) 2 (1.3)