Table 5 Participants’ self-assessment of their knowledge about RD
From: Needs assessment study of rare diseases education for nurses and nursing students in Poland
Items | Students N(%) | Nurses N(%) | p |
|---|---|---|---|
How would you rate your knowledge about rare diseases? | Â | Â | 0.006 |
 Very good | 4 (3.5) | 0 |  |
 Fair enough | 2 (1.8) | 4 (2.6) |  |
 Insufficient | 46 (40.7) | 87 (56.1) |  |
 Very poor | 61 (54) | 64 (41.3) |  |
Do you feel prepared for caring for a patient with a rare disease? | Â | Â | 0.0000 |
 Definitely | 0 | 0 |  |
 Rather yes | 3 (2.7) | 26 (16.8) |  |
 Rather not | 51 (45.1) | 72 (46.4) |  |
 Definitely not | 44 (38.9) | 48 (31) |  |
 I do not know | 15 (13.3) | 9 (5.8) |  |
Would you like to broaden your knowledge about rare diseases? | Â | Â | 0.15 |
 Yes | 94 (83.2) | 141 (91) |  |
 No | 3 (2.7) | 3 (1.9) |  |
 I do not know | 16 (14.2) | 11 (7.1) |  |
Do you think that there should be a mandatory course on rare diseases in the medical curricula? | Â | Â | 0.0000 |
 Definitely | 26 (23) | 61 (39.4) |  |
 Rather yes | 60 (53.1) | 71 (45.8) |  |
 Rather not | 12 (10.6) | 10 (6.4) |  |
 Definitely not | 2 (1.8) | 0 |  |
 I do not know | 13 (11.5) | 13 (8.4) |  |
Did you / do you have any classes about rare disease during your studies? | Â | Â | 0.29 |
 Yes | 36 (31.9) | 57 (36.8) |  |
 No | 60 (53.1) | 84 (54.2) |  |
 I do not know | 17 (15) | 14 (9) |  |
Where do you / did you get your knowledge about rare diseases from? | Â | Â | 0 |
 Mandatory courses at the university | 12 (10.6) | 27 (17.4) |  |
 Facultative courses at the university | 9 (8) | 10 (6.5) |  |
 Scientific literature and research | 15 (13.3) | 34 (21.9) |  |
 Scientific conferences, symposia | 7 (6.2) | 23 (14.8) |  |
 Internet | 62 (54.9) | 123 (79.4) |  |
 Other | 3 (2.7) | 13 (8.4) |  |
 I do not search for such information | 27 (23.9) | 2 (1.3) |  |