Table 3 Which of the following diseases are considered to be rare in Poland?
From: Needs assessment study of rare diseases education for nurses and nursing students in Poland
Items | Students N(%) | Nurses N(%) | p - value |
|---|---|---|---|
Sickle cell anemia | 6 (5.3) | 15 (9.7) | Â |
Cystic fibrosis | 15 (13.3) | 43 (27.7) | 0.005 |
Acromegaly | 19 (16.8) | 23 (14.8) | Â |
Haemophilia | 9 (8) | 33 (21.3) | 0.003 |
Down syndrome | 2 (1.8) | 5 (3.2) | Â |
Niemann-Pick disease | 56 (49.6) | 64 (41.3) | Â |
Halitosis | 12 (10.6) | 12 (7.7) | Â |
Glaucoma | 0 | 1 (0.7) | Â |
Progeria | 32 (28.3) | 43 (27.7) | Â |
Neurofibromatosis | 10 (8.9) | 33 (21.3) | 0.009 |
Craniodiaphyseal dysplasia | 18 (15.9) | 26 (18.3) | Â |
Cerebral palsy | 6 (5.3) | 3 (1.9) | Â |
Fibromyalgia | 38 (33.6) | 28 (18.1) | 0.004 |
Huntington disease | 36 (31.9) | 78 (50.3) | 0.003 |
Duchenne muscular dystrophy | 35 (31) | 68 (43.9) | 0.03 |
Acquired immunodeficiency syndrome | 6 (5.3) | 9 (5.8) | Â |
Munchausen syndrome | 59 (52.2) | 62 (40) | 0.05 |
Mucopolysaccharidoses | 19 (16.8) | 42 (27.1) | 0.05 |
Achondroplasia | 21 (18.6) | 32 (20.7) | Â |
Crohn’s disease | 12 (10.6) | 20 (12.9) |  |
Pompe disease | 58 (51.3) | 75 (48.4) | Â |
Gaucher disease | 56 (49.6) | 70 (45.2) | Â |
Fragile X syndrome | 48 (42.5) | 65 (41.9) | Â |
Marfan syndrome | 43 (38.1) | 60 (38.7) | Â |
Schizophrenia | 1 (0.9) | 1 (0.7) | Â |
Alzheimer’s disease | 1 (0.9) | 1 (0.7) |  |
Osteogenesis imperfecta | 18 (15.9) | 62 (40) | 0.0000 |
Phenylketonuria | 14 (12.4) | 42 (27.1) | 0.004 |