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Table 2 Cost of illness (COI)

From: Costs of illness in amyotrophic lateral sclerosis (ALS): a cross-sectional survey in Germany

  Mean annual costs in € (95% CI) Ratio of total COI (percent)
Direct medical costs 28,087 (20,911-35,263) 35.9
Formal care 8888 (2601-15,174) 11.4
Further therapies 7629 (6610-8649) 9.7
Hospitalisation 4568 (2991-6145) 5.8
Supportive devices 2785 (2032-3538) 3.6
Drugs 2190 (1971 − 2409) 2.8
Inpatient rehabilitation 885 (607–1162) 1.1
Outpatient physician consultations 612 (515–710) 0.8
Surgery 189 (114–263) 0.2
Outpatient hospital consultations 180 (140–220) 0.2
Psychological support 161 (29–293) 0.2
Direct non-medical costs 38,412 (31,695-45,130) 49.1
Informal care 36,152 (29,621-42,683) 46.2
Constructional alterations 1871 (1123-2618) 2.4
Travel expenses 353 (270–436) 0.5
Legal support 9 (1–18) 0.0
Other costs 27 (24–31) 0.0
Indirect costs 11,757 (8232-15,282) 15.0
Total COI 78,256 (66,583-89,929) 100.0
  1. Incurred costs per ALS patient and year in the different cost categories from a societal perspective. Other costs consisted of e.g. ALS-related fitness centre membership and others. Due to rounding, percentages do not add up exactly
  2. Abbreviations: Euro, CI confidence interval