Table 1 Regional membership in the Phelan-McDermid Syndrome Foundation and 2018 PMSF International Conference attendance. The majority of attendees were from regions within the US, but an additional eight international representative were also in attendance

US Regions

N (%)

Conference Attendance 2018

REGION 1 NORTH: AK, ID, OR, WA, WY

45 (5)

REGION 1 SOUTH: CA, HI, NV

112 (11)

REGION 2: IA, MN, NE, ND, SD, WI

73 (7)

REGION 3 NORTH: KS, AR, MO, OK

61 (6)

REGION 3 SOUTH: LA, TX

85 (9)

REGION 3 WEST: UT, AZ, CO, NM

42 (4)

REGION 4 CENTRAL: PA, NY, NJ

122 (13)

REGION 4 NORTH: VT, NH, ME, RI, CT, MA

45 (5)

REGION 4 SOUTH: DE, MD, WV, VA, WASHINGTON DC

61 (6)

REGION 5 NORTH: TN, NC, SC

56 (6)

REGION 5 SOUTH: AL, FL, GA, MS

99 (10)

REGION 9: IN, IL, KY, MI, OH

171 (18)

US Total (including 2 unreported State)

974

158

International Regions

N (%)

REGION 6: Ireland & UK

252 (24)

2

REGION 7 WEST: Alberta, British Columbia, Manitoba, Saskatchewan

38 (4)

14

REGION 7 EAST: New Brunswick, Newfoundland, Nova Scotia, Ontario, Prince Edward Island, Quebec

58 (6)

REGION 8: Australia, New Caledonia, New Zealand, India

130 (12)

4

REGION 10: Mexico

7 (1)

REGION 11: Central America

3 (< 1)

REGION 11: Brazil

85 (8)

2

REGION 12 NORTH: Spain

66 (6)

1

REGION 12 SOUTH: Portugal

8 (1)

REGION 13: Belgium, France, Luxembourg

112 (11)

1

REGION 14: Germany, The Netherlands

59 (6)

REGION 15: Italy

36 (3)

REGION 16: Denmark, Finland, Norway, Sweden

47 (4)

1

REGION 17: Albania, Austria, Bosnia, Bulgaria, Croatia, Czech Republic, Hercegovina, Hungary, Macedonia, Moldova, Romania, Slovenia, Switzerland

31 (3)

REGION 18: Brunei, Indonesia, Malaysia, Philippines, Singapore, Thailand

22 (2)

1

REGION 19: Poland

12 (1)

REGION 20: China, Taiwan

17 (2)

REGION 21: Greece, Turkey, Israel

27 (3)

REGION 22: Russian Federation

3 (< 1)

1

Total (including 18 unreported Country)

1032

185